Search results

Crohn's Disease Forum

Help Support Crohn's Disease Forum:

  1. B

    Please advise- afraid I am losing it!

    P.s. Please also look for a good acupuncturist in your area, preferably one with MD training as well. When nothing else helped, and my only option was narcotics, i found massive, almost immediate relief with acupuncture. Hao Yao, in Northern Virginia, is my TCN doctor, and he's amazing. He...
  2. B

    Please advise- afraid I am losing it!

    I'm a 32 year CD sufferer, two resections, currently struggling with pseudo-obstructions that appear to be endometriosis and/or adhesion related (but no one can really determine the cause). If what you're suffering with is cramping pain, not related to adhesions, but active crohns, one option...
  3. B

    Hygiene Hypothesis and the Whip Worm.

    @Kimm0913 - do you know what restrictions there are in terms of the current regimine for participants? e.g., do you have to stop all current treatments during the trials, or only biologics, etc.? Good luck!
  4. B

    Hygiene Hypothesis and the Whip Worm.

    There's a great pro-con article on ABCnews dot com called "Allergy Desperation: I'll Take a Parasite, Please" from 2009 that is really an excellent overview of the hopes and concerns of the medical community about this therapy. Anyway,there's nothing illegal about using the worm eggs - it's...
  5. B

    Starting Remicade and feeling scared

    I have a family history of various cancers, and I was really wanting to avoid going on Remicade, but after six miserable months out of remission, it was the only choice... Like others have said here, when I looked at the increased risk of cancer, the absolute numbers are still very small. And my...
  6. B

    New and confused

    I've had Crohn's for 30 years, with 2 resections. Currently enjoying a severe flare. As others have said, everyone's different, but here's my $.02... One thing: I strongly suggest you get tested for food allergies too... Food allergies can manifest as creating an urgent need to go to the...
  7. B

    New and confused

    I have had 2 bowel resections, and have experienced this strange phenomenon for years... All I can tell you is from what I've read and seen, this is not related to a stricture, but rather the way your bowel is processing food... I've not found an explanation, only documentation indicating it's...
  8. B

    Major Theories of Crohns.

    Oddly, since the announcement in 2008 of a study finding genetic indicators of a predisposition to develop IBD, I haven't seen people looking at so much is the hereditary component... Three generations of women in my family have this disease! My mother has UC, my maternal aunt has UC, my...
  9. B

    Interested in LDN

    Thanks for sharing your story - I'm going on 30 years diagnosed with Crohn's, and UC diagnosed in 2007, and after 2 resections, I've hit the first flare that I simply cannot kick... going on 4 months now. Maddening. Anyway, I started looking at LDN therapy. Azathioprene/Imuran/6-MP are all...
  10. B

    In hospital waiting for re-section - should be today 6/26/12

    I've had 2 re-sections since 1995, and it is the BEST thing ever!!! It will be worth the wait, I promise. :emot-dance: I'm in the US. They gave me an epidural so I was able to get up and walk <24 hours post-surgery. This seemed crazy at the time - I was so scared my incision would split - but...
  11. B

    Still undecided on Imuran

    I see a lot of fear about Imuran on this thread, so let me share a story that may help put some minds at ease... I'm 39. I was diagnosed with Crohn's in 1982 at 9 years old, and UC diagnosed in 2007. I've had 2 bowel re-sections, mostly small intestine plus a little of the large, due to...
  12. B

    Decreasing dosage?

    I have had good success with Imuran for the last 5 years. I was on 125mg, and due to a recent severe flare they bumped me to 150mg. What the other poster said is true - it's not about the dosage per se... it's about how your body is metabolizing it. Originally I was on 100mg, but after 6...
  13. B

    Imuran Side Effects

    I've been on Imuran generic Azathioprene since 2007, between 100-125mg/day with zero evident side effects. Bumped to 150mg/day in February due to a flare, and after 3 months began to see additional hair loss, though I'm not going bald yet, thank goodness! I also tend to get a lot of tiny 'micro...
Back
Top