• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

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    Methotrexate and horrible side effects

    Well..this medicine is really hard for me to withstand it. I was on the routine dose of 25 mgs.i ended up in the hospital for 4 days be side my whole mouth and throat were covered with these deep craters. So I was taken off that and humira for a week and restarted humira and methotrexate at...
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    Word to the wise(:

    Hi all.. I just wanted to post some experiences I have had on methotrexate as I started on it along with humira recently.. I have had many side effects. The first ones were flu like at toons with low grade fevers, severe muscle aches, night sweats and chills, nausea and vomiting. Then came the...
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    Life is seeming very hard

    I just wanted to reach out and ask for some support. I have been feeling lately that there is little hope in my life..feeling better,having a sense of purpose or joy. I we t to Chicago last month to get into the stem cell transplant program which I am still being evaluated for. I am not ill...
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    Stem cell transplant eval

    Well,I thought I was basically out for even being considered for a stem cell transplant from what the doctor at university of Chicago..but I have a go light!i meet with dr Barnett on Tuesday then dr Burt on Wednesday with a colonoscopy on Friday! Whoa..that was quick work!i only called them...
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    Can't live with them,can't live without them!

    Oh the love/hate relationship I have with western medicine doctors!i absolutely see their place in the world. They help us to navigate through the web of confusion,assisting us in finding just the right concoction that will give us a better quality of life. Most are compassionate,going into...
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    I dread food

    I know..I post a lot on this site so please excuse another one!i can't seem to find what I can eat without having pain and diarrhea. I've tried it all.. High protein, low carb; extremely health and clean diet from all processed food; processed food, fast food, no meat, meat,no veg,veg thats...
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    Need some advice please!

    Hi again!i feel like I'm burning my computer out posting here..hope I'm not burning you all out too!(: I need some advice.. The er doctor didn't seem too impressed that I have wall thickening and inflammation in my terminal ileum with these enlarged lymph nodes in my right groin. I'm going to a...
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    Duodenal cat scan findings

    Oh crud!now I have stranding seen on a cat scan tonight with a duodenal ulcer. Anyone else have duodenal disease?is this your garden variety ulcer or crohns?i also have thickening in my ileum with enlargEd lymph nodes with stranding also in the ileum..of course, all my blood work is...
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    Feeling poorly again):

    Hey everyone..I was in the hospital last week with a flare and passing kidney stones. I left feeling pretty good. Now I'm starting to spiral down again): low low energy to the point of not wanting to get out of bed, take a shower,etc. this is crummy in general!crohns has hitch hiked my body and...
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    The chronic illness experience

    I just wanted to share a book I am reading called The Chronic Illness Experience by Cheri Register. Although not specifically for IBD, this book is the best I have read concerning issues dealing with having a chronic illness. It covers all sorts of specific areas in our lives that are hit hard...
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    A pain in the bum!

    Ok..I'm putting in a lot of threads today!(: thanks for reading them!my question is: I know I have roids bit I get some amazing pain in my butt with radiation into my left cheek..like into the muscle. I've never had fistulizing crohns, have no redness or swelling down there,just the bad pain. In...
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    Do you ever wish?

    Yeah..I sure do!:) so many things but right now I wish my crohns would sit up and have a huge sign saying 'HERE I AM!!' my crohns had never presented in a textbook fashion whatever that is! But my inflammatory markers have always been nil, the only thing that shows up occasionally is...
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    Update and I love this forum!!

    Hi all!i just wanted to share whats been going on with me. I was just discharged from the hospital with a flare up and kidney stones..that was new and fun!:frown: But I passed the stones and my flare has calmed down for now.i went to a new hospital for me and saw a different doctor who seems...
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    Honking pissed!

    Ok..needing to vent!i just got copies of my records from my gi doctor because I wanted a referral to a colorectal surgeon. I'm a nurse so can interpret data pretty well. My labs are and have always been normal..always. But my colonoscopy showed crypt abscesses and moderately active crohns in the...
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    Happy happy joy joy!!

    Oh you sweet people!!after having read various recommendations for lotions and potions for the back side, I followed two of them and I think my life has just changed!! 1)..procto foam..my new BFF!! In the states it's very expensive but right now I have no co pays so you better believe I'll be...
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    Desperate..for advice and opinion

    Hi all..I may have placed a post here previously on this issue. But I wanted to get some advice. I am going to an IBD clinic in Chicago at the end of September and I am to a point with my crohns that I want to lobby for an ostomy. I want to hear how you all have felt this has changed your life...
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    Does it really matter??

    Well,I have to be honest..I'm completely baffled by crohns!it seems like nothing effects it that I can place my finger on..taking humira,not taking humira,watching my diet,eating whatever I please.. I am just not sure anymore that what I do or don't do really affects the course of the...
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    Miss poopy pants!

    This is a embarrassing illness isnt it?? I now wear sanitary pads and I haven't had a period in over 30 years because of a hysteectomy..I'm pooping liquid, blood, mucus..loverly!! I'm trying to stay positive and am struggling with it. I do things each day that will help me lift my mood even if...
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    Experience with vsl#3?

    Hey all!im super excited! I just got a batch of vsl3 DR and read the clinical data online..studies are very positive! What is your experience with vsl? Do you find it's helpful?any input would be appreciated!:kiss:
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    Strange pooh question!

    :redface:Ok..this may be gross but here I feel I can ask away!im sure I'm not te only one that looks at their poop each and every time!here goes: I've noticed these weird transparent hollow tubes in the toilet with my defecation, sort of like sausage casings. I was tested last week for Iva and...
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