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I was put on Humira as a last resort. If this doesn't work well then I will be referred to the surgeon to discuss surgery. Really hoping this works. Humira doesn't work straight away, for me its taken 3 months to feel OKish, around 60% better. Hope everything works out for you

Hi everyone, Has anyone heard or been on this medicine? I failed all other drugs such as Aza and 6MP. Currently on weekly Humira 40mg and things are still unstable and the increase from every 2 weeks to weekly has only helped a little. The doctor has told me she would like to introduce...

I have been on Humira for over 2 1/2 months now and I have had 8 injections since. Just as I had my first loading dose, I had started flaring up, I went to hospital and I was put on 40mg pred. I was told by my GI to taper as quickly as possible and carry with Humira 40mg every 2 weeks. (I was...

I was told to take Buscopan for abdominal pains by my IBD nurse? I took and and made no difference what so ever, waste of money. I think its aimed for people suffering from IBS

Agreed, It is a wonderful Drug and I love how it works so fast and makes me feel better than normal, energy buzz, increased weight gain (need it when Im flaring). I was on it for a month recently and best month ive had this year, came off it and still on Humira but feel so crap and going through...

I was put on Remicade as I was tapering off Pred, I was on 20mg when I had my loading dose. I took it very slow to taper off and during that time I felt horrible and my symptoms came back and i was really struggling to get off 5mg. I called the GI and they bought my next infusion forward ( 6...

Thank you for your reply, appreciated! It gives me tons of energy too and I was non stop working around the house and the garden. But 2 weeks after coming of them, it all came back. Dr's keep saying its too risky to stay on both, but doesnt feel like Humira is doing the trick. Just wish there...

Hello everyone, Been on Humira for just over 10 weeks. Loading dose didn't go down too well, GI believes I had an infection straight after it and had a really bad flare, I was put on steroids when I was admitted into Hospital. I came off after a few days because I really didnt want to stay on...

Hi, I was on Remicade for 5 months and worked wonderfully (only felt the real benefit after 3 infusions), GI suggested I switch to Humira is its more 'Human' and less chance of developing antibodies. My loading dose was 80mg (double shot) usually its 160mg if you havent had Remicade before...

Ah yes, I've researched a lot about Lymphoma and the risk of getting this cancer whilst on Remicade. I guess theres always risks with medications, just have to hope for the best. Thank you very much for clarifying that for me and for providing a detailed explanation. I had no idea about a...

My moon face really kicked in quickly at 40mg, but i started showing signs at around 30mg. Ive been off it 3 months now, still got a bit of a moon face, although not as bad! But its slowly going away :) Funny how this drug gives you a moon face! I used to think 'no way its impossible' but then...

Sorry if this a stupid question, what is HSCTL?

I am just concerened because I'm glad that Remicade has started working for me and its the only thing that has kept me healthy and strong without any side effects. Im just slightly worried it might end up making things worse for me and I might end up completely loosing the effect of Remi. I was...

I've been advised by my GI that she might consider switching me over to Humira, what i dont understand is if remicade is working good, why switch me over? What if Humira doesn't actually work and I go back to Remi and that stops working!

Chris - Your experience is very similar to mine, i turned up on my appointment day and told me I wasn't even booked! They lost my prescription and had to wait for IBD nurse to write one out again, I had to wait around for them to order the medicine from the pharmacy which took over 3 hours!!

I definitely agree with you there! I didn't feel big improvements until after my 4th Infusion, GI were about to stop the treatment at 3rd but I insisted to give it one more try and BOOM it worked. Everyones body is different and some get immediate responses whilst it takes some time for others...

Clash - Are those the only meds your son is currently taking? Did he try Imuran or 6MP instead of MTX? Does he feel any additional bad side effects from adding MTX on top of Remi? Im worried I'll be knocked out every weekend after taking MTX..as weekends are the only 2 days I have to socialise...

I think its best to stay away from 'seriously high risk' patients. But with Remicade, theres a chance of getting serious infections from others such as TB even if the person doesnt have an active disease. I've been on it for 4 months now, fingers crossed I haven't even had a cold yet, my family...

Hello everyone, I hope somebody can help me on this one..been looking for information for hours but havent had much luck on any personal experiences. I'm currently on Remicade on my 4th infusion, this 4th infusion has gone really well and it seems like its working wonderfully. After my...

Hi, You shouldnt have to use your holidays for genuine medical conditions, you are allowed to have time off for your infusions! I would strongly urge you to speak to a senior member of staff, or go straight to Human Resources and tell them about your condition and that you need time off for...