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Crohn's Disease Forum

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  1. J

    Prednisone withdrawal

    Has anyone's child had severe headaches while tapering off prednisone? It's been about twice a week and I just left a message for doc.
  2. J

    Prednisone side effects and taper

    After reading article, I should have mentioned he is also on Azathioprine.
  3. J

    Prednisone side effects and taper

    Thank you so much. Are there specific doctors at UNC? Also, what are your thoughts are to best remission medications?
  4. J

    Prednisone side effects and taper

    He is on sulfasalazin (sp?) I believe that's the maintenance med.
  5. J

    Prednisone side effects and taper

    Thanks Patricia56 - he was on 3 x a day pediasure Since bloodwork was all back to normal and he had gained so much, doctor dropped back to 1ce every other day. I think he is dropping him off pred since he believes he has healed. Now I need to begin the process of figuring out how to keep him...
  6. J

    Prednisone side effects and taper

    Thank you so much! That gives me hope!
  7. J

    Prednisone side effects and taper

    Thank you so much. Will be eager to hear doctor's response tomorrow. Wish Jack would be a little more forthcoming!
  8. J

    Prednisone side effects and taper

    No he was at 60mg for about a month, then 40 mg for a month - he's been tapering about 5mg down every two weeks. He's at 10 now and will go to 7.5 in two weeks.
  9. J

    Prednisone side effects and taper

    Just when we think we've turned a corner... so she was okay to continue the taper even with this issue? He has horrific moon face right now, not to mention all the other side effects and we are so eager for him to get back to "normal".
  10. J

    Prednisone side effects and taper

    Oh no, so what happened?
  11. J

    Prednisone side effects and taper

    Yes, they resemble stretch marks. They are on his thighs.
  12. J

    Prednisone side effects and taper

    Let me know what you hear about height too, would love to know. Hoping for the best.
  13. J

    Prednisone side effects and taper

    We will be so happy to see him grow. It's been a long time trying to figure out what's wrong. We are happy with the weight gain but would love him to be back to the 50% percentile he's always been. He's 12. I'll call the dr. about purple marks tomorrow. He said he showed me before, but I...
  14. J

    Prednisone side effects and taper

    Hi - has anyone seen purple marks on their child's leg after taking prednisone? My son just showed up the purple bruise looking marks. He's been on pred for 3 months and has tapered to 10mg per day from 60 mg. Also, curious if your child started growing after getting off of it. He hasn't grown...
  15. J

    Diaper Rash

    Thank you - he felt better the next day after using Aquaphor and we bought some calmoseptine for the next time.
  16. J

    Son recently diagnosed

    I am so happy to hear your daughter's shoe size grew. My 8 year old son wears the same size and we were starting to worry about that. Thank you so much for that message! FYI - we moved from Farmington CT last summer. He was being treated by an arthritis doctor when we left. How long was...
  17. J

    Diaper Rash

    Would it be normal for a doctor to order an X-ray if this is happening? He wants to see if he's constipated? I am just so leery of all these drugs and tests and would be thrilled to minimize if possible.
  18. J

    Son recently diagnosed

    We have our next appointment next week. The bleeding seems to be more from hemorrhoids I would guess. He has a "diaper rash". I'm eager to get him to his next appointment to talk about alternatives.
  19. J

    Diaper Rash

    No, I have no idea - he's 12 and says it's painful.
  20. J

    Diaper Rash

    What do I do about "diaper rash" on my 12 year old son? Thanks.
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