• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

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  1. Cozmo

    Feeling Uncomfortable...

    Hello all, I'm a few weeks in to methotrexate for a second time. I took myself off them the first time as I started to get tense in the left hand side of my head, shoulder, and down the left handside of my body. I agreed to start them again on a lower dose and with daily folic acid but I've...
  2. Cozmo

    Methotrexate Side Effects?

    Hello all, I'm a few weeks in to methotrexate for a second time. I took myself off them the first time as I started to get tense in the left hand side of my head, shoulder, and down the left handside of my body. I agreed to start them again on a lower dose and with daily folic acid but I've...
  3. Cozmo

    Immune-suppressents and Immune Increasing Vitamins

    I've just started Methotrexate. I've been taking 2000-4000mg of Vitamin C over the last year or two to help boost my immune system. Will it defeat the purpose of the immuno-supressents if I keep on taking the Vitamin C? Should I just stop taking the Vitamin C for the methotrexate to have it's...
  4. Cozmo

    Aortitis

    -------------------------------------------------------------------------------- Hi, I've recently being discharged from hospital after 3 weeks having being diagnosed with Aortitis. I've had a pic line fitted and getting 100ml IV erthapenam antibiotic for 6 weeks, but apparently, even though...
  5. Cozmo

    Aortitis - Urgent Help Needed

    Hi, I've recently being discharged from hospital having being diagnosed with Aortitis. I've had a pic line fitted and getting 100ml IV erthapenam antibiotic for 6 weeks, but apparently, even though the aorta is the main blood supply, the vessel itself receives very little blood. This is...
  6. Cozmo

    Vitamin C and Immunesupressents?

    Can anyone advise me on whether or not I should continue taking Vitamin C Effervescent 1000mg-2000mg a day now that I have started today on Azathpioprine? Surely it is conflicting in the sense that one is taken to strengthen the immune system while the other is taken to suppress it.
  7. Cozmo

    Stuck on Prednisone

    I'm stuck on Pred at the moment. If I try to come off it I'm straight in to intense flaring. I've got a duct that is blocked(semen), and I get pain in my lower left abdomen. The Pentasa on it's own does nothing for me. I've got my first appointment with the specialist gastro I've been...
  8. Cozmo

    Come off steroids and in flare up within 24hours!

    I've been on a 6 week reduction of steroids(prednisone) since getting diagnosis. I've tapered the latter reductions which has extended it to about 9 weeks. I had my first day off them yesterday. Come evening time I'd started to flare up a little but I just went to bed hoping it would simmer...
  9. Cozmo

    Pains/Numbness in Toes, heels, hands or fingers

    Has anyone experienced any pains or numbness in their toes, heels, hands or fingers? I've been getting pains in my heels for a few years now, and I've also had numb toes when exercising. Could this be related to Crohns? I'm guessing a reflexologist would say that it could be as all parts of...
  10. Cozmo

    Do other people here find they need to sleep in the daytime?

    I find that if I don't have an hours sleep in the afternoon I end up absolutely exhausted. Do any of you have the same problem?
  11. Cozmo

    Can bad breath be related to Crohns?

    My partner has commented on my breath smelling worse recently. I just wondered if anyone else had experienced this as well. I'm not sure if it's connected to something adominal. I know my teeth and gums have suffered due to my blood deficiancies, so that probably adds to it a bit. Oh well...
  12. Cozmo

    Learning to Live with Crohns Disease

    Hello Crohns Family :ghug: I'm really pleased to have discovered this site, I no longer feel so alone with this strange disease. It all started 8 years ago when I was rushed to hospital gastric heamoraging. I was given an endoscopy and diagnosed with gastronitis and put onto Lansaprazole...
  13. Cozmo

    Is it related to Crohns if the body stops producing semen?

    I've recently been diagnosed with Crohns. About 6-8 weeks ago my body stopped producing semen. Does anyone know why this might be? Is it related to the Crohns at all? Any help or suggestions would be greatly appreciated.:sign0085:
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