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My health also regressed when on predisone and also remicade. So they do not know what to do with me. However, it has been found those medications made me worse as they would allow infection to set in, every time. Last time it took over 6 months to diagnose the infection. I felt I was dying...

Hi Dave, Wow Thanks for the research with and keeping open mind when doing your research. Could you send me a link to your next thread you have or will be writing. I would love to read your information you post. Your suggestions may help me. allergies (food & enviro since birth requiring...

I have found this stuff is the only thing that has helped me. The last thing my doctor tried was remicade and I continued to regress. This product is the first to item to give me hope of improvement of some symptoms. I drink 1-2 oz of 100ppm per day and I also do a sinus flooding technique...

I am not talking one doctor that missed it. I am talking about 6 doctors from 2 different hospitals missing it. I even had the severe migraine going down into my jaw while in hospital and was dismissed. But never physically checked by any doctor except when first arrived at ER. See my family...

Well in my case, I'm thinking ya. I've been progressively getting worse and worse to the point I felt I was dying. Couldn't eat or drink anything without being sick. So went to hospital. Eventually I also ended up with severe migraine while in there that was different than my normal migraines...

Eating yogurt lots and lots. Never used to be able to, dairy would cause severe migraine that would last and last and last. Soups free of vegetables with egg noodles. It sucks but gotta do what works for now.

Hi I've been reading through this and it is very confusing. I think for doctors too. My doctor had me on low fiber then specific carb and recently told me to go back to low fiber. None helped until I went no fiber in desperation for some relief. I was told oatmeal white bread and such should be...

For gastro related allergies I did have a IGG test done. Mine came back severe to sugar cane, cranberries, yeast, and sesame seeds. I did completely removed from diet made no difference. But may also be because to avoid sugar have to go high fiber. Can't do both. Unless I want a meat only diet. Lol

The nalcrom worked for about 5-6 years. Then problems started and progressively got worse.

FYI one more thing I recently tried to test for is histimine intolerance. What an awful condition for someone with allergies and producing excess histimines. I took dao before meals got a month. Unfortunately no improvement. I took my last capsule over a week ago. This could also cause similar...

It's all an autoimmune response. My gastro told me point blank he does not believe in food allergies insofar as the cause of any of my symptoms. However my family doctor was dumbfounded when I had an allergic reaction by not taking my food allergy capsules (sodium cromoglycate -nalcrom) to an...

I am the only one in the family that has been diagnosed. As a baby I could not tolerate formula and needed special formula mixed up. I just simply threw up everytime I ate. Dairy is bad. I remember only once drinking instant breakfast the liquid breakfast powder mixed with milk. I got very...

Hi Thanks so much for all the help. Funny I've been diagnosed but my doctor seems to reject the diagnosis. I suspect he might be one of those doctors that works for insurance companies to debunk claims. Thank God my family doctor is great. Good news today was a good day "for me". Took 10...

He has a chart that shows the progression of medications available. He did try me on cecemet (nabilone) when zofran was not available. It made me dizzy at first then it helped some. But was not as good as zofran. So I have choice one or the other. Maybe a stronger dosage would work better. I...

I was first on pentasa then azathioprine (still taking) and had my 3rd infusion of remicade Feb 21. He states my capsule endo didn't show any issues to explain my symptoms therefore must be ibs. When surgeon opened me for bowel obstruction. He though I had adhesion disease no visual sign of...

Nope says remicade is the last option. I could try to beg the surgeon that told me to get a life to cut out the bottom section of bowel. But other than that nothing. Asked him about doing an MRI he asked me what would I do if That came back negative. I suppose that means I'm shit out of luck...

Hi I was undiagnosed for years until I had an obstruction. They removed the obstruction told me I would be good as new after surgery. They lied. The lab diagnosed crohns by testing the bowel section that was removed. Anyway removed 20 cm and did 4 stricturplastys and told me I was good as new...

Omg The #1 symptom migraines. I have been on Botox for over 3 years for migraines. I did not mention migraines as I was told it had nothing to do with the crohns. The migraines started over 6 years ago and had migraines daily. I was on morphine for the migraines originally until the Botox really...

If the remi doesn't help my plan is to eat something hard and larger than the cap camera that will cause a full blockage within 3-4 hours go to the hospital in different city and get the blockages cut out through emergency surgery. If that doesn't help then there is really nothing left to try...

I've researched final options if this does not work. Dyk that 2% of the people that choose assisted suicide where it is legal have Crohn's disease. Sad but true. I guess that is from no hope in a future. I'm not there yet but feel within the next bit if cant get fixed somewhat. It sucks to be...