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Crohn's Disease Forum

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  1. D Bergy

    Carrageenan

    One substance found in some brands of root beer bothers my guts. Quillaia whichis from certain tree bark is considered a natural soap. It can also be in root beer. Both carrageenan and Quillaia are considered emulsifiers. It is likely this aspect of the products are what cause problems...
  2. D Bergy

    Convinced of Issue that Creates the Crohns/Colits

    If you do an internet search: “mycobacterium avium thyroid” you will find several studies. Many references to Hashimoto’s, another autoimmune disease. Mycobacterium avium lupus search brings up more on this autoimmune disease. If it is truly involved in the disease process, then it does...
  3. D Bergy

    Convinced of Issue that Creates the Crohns/Colits

    Things common to thyroid problems and Crohn’s. Research says,MAP.
  4. D Bergy

    Herbals for MAP

    I used Cryptolepis sanguinolenta from Woodland Essence. https://woodlandessence.com/collections/buhner-extracts/products/cryptolepis-root-extract
  5. D Bergy

    Herbals for MAP

    Hello. Have not been active on this forum for years, but came across some information that I was not aware of before. I believe that I stated that I only knew of one way of eliminating MAP and that was by using the Mycobacterium Avium frequencies that I used running a Rife machine. There...
  6. D Bergy

    What happened to David and many of the old members?

    I am still alive and doing well. Just on to other things. I think I posted about everything I had to say about Crohn’s as I was very prolific in my search for a solution. I tend to go down the rabbit hole with full force on whatever subject I need to know. Once done, on to the next one if...
  7. D Bergy

    Ranking of emulsifiers/thickeners and other problematic additives?

    I have not been symptomatic in over a decade and can eat anything without problems. There is one exception though. In some root beer there is quillaia extract and it upsets my stomach. It took me a while to nail down the ingredient but root beer without it doesn’t bother me. if you do some...
  8. D Bergy

    Finally found something that works for me

    Mycoplasma pneumonia was one of the causes for my Crohn’s symptoms. I would get pneumonia when it was way out of control. However, it was always in my intestinal tract. I noticed when I was on antibiotics for the pneumonia (Z PAC) my Crohn’s symptoms improved for a time. It would come back...
  9. D Bergy

    This is not a very good forum..

    I was an active poster when I was having problems and was looking for actionable information to help myself with the disease. Information without a method of using it is a waste of time for me. I did get a lot of good information here in the past that I was able to apply to my treatments. I...
  10. D Bergy

    Running out of treatment options

    I use only alternative treatment targeting the pathogens that caused my symptoms. Its a bit of a learning curve but it has kept me well going on ten years now. I eat whatever I want but try stay away from processed food. Not always successful at that. Had popcorn and a Buster bar tonight but...
  11. D Bergy

    How linoleic

    I guess you can argue with the authors of the articles. I don’t have a dog in this fight. Best regards. Dan
  12. D Bergy

    How linoleic

    I don’t see much disagreement. The Harvard study recommends 5 to 10 percent of energy consumption of LA. Not the 15 to 20 percent that is being consumed today according to the Mercola article. Consistent with the American Heart Association guidelines, our data continue to support...
  13. D Bergy

    Carbon 60

    One thing I will add is that I think Carbon 60 has a chance at improving ankylosing spondylitis. The reason is it does seem to kill klebsiella pneumonia in the body. Klebsiella pneumonia has been identified by researchers as possibly involved with this particular condition. Dan
  14. D Bergy

    How linoleic

    I thought this article was important enough for people in our situation...
  15. D Bergy

    Carbon 60

    Hello. I am the only one who uses it regularly. I can’t say I notice improvement mainly because I can’t really improve much more. I am essentially normal and was pretty much normal when I started using it. My son has been testing various things for his hydradenitis. One thing that always...
  16. D Bergy

    Anyone else have some luck with inulin fiber?

    Hello and thanks for bringing this to my attention. I am using cholestyramine but would rather use something thats not so expensive and not a pharmaceutical product. Its the only medication I use due to surgery that removed my ilium and the valve located there. Where do you get your Inulin...
  17. D Bergy

    Causes of Crohns any guess

    I believe it starts with a dysfunctional immune system. What causes the dysfunction I do not yet know. Since what causes the immune system problem is unknown to me, I guess whatever it is would be the root cause of the disease. It could be more than one thing. Dan
  18. D Bergy

    Corona Virus

    UK recommendations for IBD patients on various medications. https://www.bsg.org.uk/wp-content/uploads/2020/03/Grid-IBD-self-isolation-2020-03-21.pdf
  19. D Bergy

    Corona Virus

    https://pubmed.ncbi.nlm.nih.gov/32196933/
  20. D Bergy

    Coronavirus/Covid-19

    The risk would probably be similar to the Flu. Unless you are 70 + years old, I wouldn't be too concerned. Dan
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