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Crohn's Disease Forum

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  1. M

    Upcoming surgery advice

    Hello! I had my first surgery this past August 2013 and had a very positive experience (all things considered). I had to have surgery due to a perforation in my terminal ileum and other areas that were severely narrow/blocked from inflammation. My surgery was done at Froedtert Hospital in WI...
  2. M

    Is it worth asking for a PICC Line? URGENT HELP!

    Bad news and good news... Bad news is that my picc that was placed in February had to be taken out last week due to an infection. Good news is that my infection has cleared and they were able to place a new one in so I can continue my TPN. This one probably won't be in for too long though -...
  3. M

    Is it worth asking for a PICC Line? URGENT HELP!

    Hi all, Just thought I'd give an update that I still have the same PICC line that was placed in February. It's working fine and I haven't had any problems with infections. I've had a few issues with clots in the line, but they were easily fixed with activase. I'm still on schedule to have the...
  4. M

    Wednesday they want to put me on meds I am afraid of!!!

    Hi kayalolo, I agree that drugs can be scary - from the time of my diagnosis I had chosen to do the nutritional therapy (only drinking Boost (similar to Ensure) for 6 weeks) instead of taking prednisone. I also have tried quite a few of the "traditional" Crohn's meds and have had some bad side...
  5. M

    Is it worth asking for a PICC Line? URGENT HELP!

    I hope not! From what the doctors/nurses tell me, it should be able to last that long. I'm still learning though, I've only had it for 2 months now.
  6. M

    Is it worth asking for a PICC Line? URGENT HELP!

    I've heard varied lengths of time - from a few weeks to a few months. Mine will be in for about 6 months.
  7. M

    Keep messing up my Humira shot :(

    My GI recommended using an ice pack about 20-30 minutes before doing my Humira injection (I normally inject in my thigh). The ice numbs the skin/helps with the burning - although I'm getting used to it now and don't use ice packs anymore. Hope that helps!
  8. M

    Is it worth asking for a PICC Line? URGENT HELP!

    I recently got a PICC line placed while in the hospital for TPN. I'm now home and able to manage my PICC line on my own, however there are restrictions. You're not supposed to lift anything over 10 lbs with that arm - really limits activity. I also have to have the dressing changed/bloodwork...
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