Hi,
I am a new member. I have had stomach issues since I was 17, and I am now 41. To give the full history, I was unable to digest food when i was born and in the hospital as a newborn. All cleared up and had no real problems until around 17- after a trip to Jamaica-stupidly drank water from a stream. I've told doctors about this. I was diagnosed with IBS and then Crohn's back in 95, then told that was not what I had. October 2011, after a colonoscopy, DR said I had Crohns ( in a letter). Then I received another letter saying it was just infection. Then, I was diagnosed with Crohn's last March- 7 ulcers in my colon and ileoccu....(sp?). The doctor wanted to put me on Humira. I felt like I had managed what was obviously Crohns for years on my own, and that this was a drastic measure. They then wanted to put me on Remicade then Imuran (sp?). I did a regimen of steroids, began exercising, eating right and juicing, no gluten and did better. I may have gone off the steroids too soon. Probably did a full 6 weeks on them from start to wein. However, this past january the flare ups started and they have come each month-with January and February accompanying the onset of my period. I have been taking Dr. Ohhirra's probiotic professional formula, colostrum, glutamine, ph drops in my water to alkaline as much as possible. The past 2 flare ups I took cipro to calm the infection which worked, for a month. This time, I went to the DR I saw another DR, and he would not give me any cipro. He wanted to put me on Asacol. He pretty much discounted me when he found out I had not taken the medicine.
So now, I feel beat. Like I have to go on this medicine and it scares me so much. I have read on here about LDN and others. I have a dr appointment wednesday with my DR and feel I need to discuss possible medicines and try to get it under control I can't live like this. I don't want to be on these meds for life. And I know they harm your body. It is counterintuitive to me to take meds to lower your immune system. It seems there should be an answer. I want to eat again! I have lost 45 pounds in the last year....although I needed to lose some But now, I do not need to lose anymore!
Any info, advice or help appreciated! I need to be prepared for an indepth discussion with my doctor on Wednesday.
Very weary of the medical professional- I question motives.
Thanks,
lori
I am a new member. I have had stomach issues since I was 17, and I am now 41. To give the full history, I was unable to digest food when i was born and in the hospital as a newborn. All cleared up and had no real problems until around 17- after a trip to Jamaica-stupidly drank water from a stream. I've told doctors about this. I was diagnosed with IBS and then Crohn's back in 95, then told that was not what I had. October 2011, after a colonoscopy, DR said I had Crohns ( in a letter). Then I received another letter saying it was just infection. Then, I was diagnosed with Crohn's last March- 7 ulcers in my colon and ileoccu....(sp?). The doctor wanted to put me on Humira. I felt like I had managed what was obviously Crohns for years on my own, and that this was a drastic measure. They then wanted to put me on Remicade then Imuran (sp?). I did a regimen of steroids, began exercising, eating right and juicing, no gluten and did better. I may have gone off the steroids too soon. Probably did a full 6 weeks on them from start to wein. However, this past january the flare ups started and they have come each month-with January and February accompanying the onset of my period. I have been taking Dr. Ohhirra's probiotic professional formula, colostrum, glutamine, ph drops in my water to alkaline as much as possible. The past 2 flare ups I took cipro to calm the infection which worked, for a month. This time, I went to the DR I saw another DR, and he would not give me any cipro. He wanted to put me on Asacol. He pretty much discounted me when he found out I had not taken the medicine.
So now, I feel beat. Like I have to go on this medicine and it scares me so much. I have read on here about LDN and others. I have a dr appointment wednesday with my DR and feel I need to discuss possible medicines and try to get it under control I can't live like this. I don't want to be on these meds for life. And I know they harm your body. It is counterintuitive to me to take meds to lower your immune system. It seems there should be an answer. I want to eat again! I have lost 45 pounds in the last year....although I needed to lose some But now, I do not need to lose anymore!
Any info, advice or help appreciated! I need to be prepared for an indepth discussion with my doctor on Wednesday.
Very weary of the medical professional- I question motives.
Thanks,
lori