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  1. robbo87

    Lump on stoma.

    Hi Guys, Just hoping i can get a quick bit of advice. I am planning on trying to get to my stoma clinic later this week but in the mean time I though id see if anyone has had similar experiences here. Basically this morning I noticed a bit of a lump (well 2 , one a lot smaller than the other)...
  2. robbo87

    Stealth Belt

    I'm looking into maybe getting one of these although I look a little pricey. Does anyone on here have any experiences with them? I currently use comfizz waistbands which are generally brilliant under my clothing for keeping everything tight etc but when I go on holiday the waistbands are a bit...
  3. robbo87

    Pulled muscle around stoma from coughing?

    I've been full of a pretty bad cold/cough this week, and now everytime I cough heavily my stomach around my stoma hurts and feels like something is pulling. whilst my stoma has never prolapsed it feels as if that is what it is trying to do. Is this normal? I've started putting my hands across...
  4. robbo87

    Not sure what to do :/

    I went into hospital yesterday to have an ultrasound and drainage procedure done on the collection in my abdomen. It's been there for months and whilst it isn't getting any bigger or causing any obvious infection my surgeon will not reverse my stoma as long as this collection is around. I was...
  5. robbo87

    Trying a 2 piece, need some advice

    Hi peeps, its been a while! how is everyone? So i've decided to give a 2 piece a go, maybe not as a permanent switch but there may be times where it comes in handy. I've asked a few people for samples and some have just come from coloplast today, got the sensura and assura. I normally use salts...
  6. robbo87

    So annoyed

    Well, Ihalf expected it but on friday I lost my job :( , I was hoping to go back soon after being off sick for quite a while, but in that time the company had been taken over by someone else and had a complete over haul, and are looking for any excuse to get people out. had a chat with a manager...
  7. robbo87

    Gutted

    well, im sure some of you will remember my previous vents after what happened last year and the court case etc. well, they've been sentenced, neither of them will go to prison. it seems having a girlfriend who has autistic children means you can do what you want these days and get away with...
  8. robbo87

    Pancaking?

    Well on friday I went away for the first time with my gf to london and stayed over, finally built up the confidence to go in a hotel and share a bed with someone only to wake up in the middle of the night with crap all over the bed with my bag at some point's completely hanging off :( then came...
  9. robbo87

    How much/often do you empty?

    Bit of a weird one maybe but how full are your bags before you empty them? I seem to be emptying my bag every 3-4 hours with about 100-200 ml in, when the bag is probably about 1/4 to 1/3rd full. But how much can I get away with if I needed to? I'm basically not sure If I'm just emptying my bag...
  10. robbo87

    Festival advice?

    festival advice? Ok, so I've decided to get a ticket for a music festival in the summer which means camping there from friday morning till monday. Has anyone got any experience or tips they can share about festivals? I've been to this festival before , before i had surgery so the whole...
  11. robbo87

    Barium Meal

    Just got a letter today telling me I'm booked in for a barium meal x-ray in 2 weeks time. I saw my surgeon last week (well it was actually the registrar as he was called into theatre) there was no mention of me having any up coming procedures, and I have no idea why I am having this done. what...
  12. robbo87

    Sticky Medical Marijuana for Crohn's Disease and Ulcerative Colitis

    This is something I've been thinking about a lot lately. I live in the UK so Cannabis is very much so Illegal, and I have no intentions of breaking the law. I have on about 3 occasions smoked a small amount whilst on a break in Amsterdam, and I have to say my symptoms did improve. For me stress...
  13. robbo87

    Worried about possible flare up

    hi guys, just looking for some advice really. been feeling pretty crappy today, was alright this morning and managed to have a bit of breakfast but the tiredness soon set in, so ive been lied in bed all afternoon watching football feeling really rough, not eating much, and my ileostomy is going...
  14. robbo87

    Metal clip/staple in stoma

    Bit of a weird one this, But when i was changing my appliance yesterday and cleaning, at the edge of my stoma, not actually on the stoma itself but the very edge of the skin if that makes sense, i saw what looked like a tiny peice of metal pretuding out, almost as if it was some sort of clip or...
  15. robbo87

    Justice

    first of all as usual sorry if this is in the wrong place, but didnt really know where to put it!.. It is with a lot of mixed emotion that i write this, And the last week has been horrible, It has brought things back to the surface that I had effectively moved on from, only for them to start...
  16. robbo87

    Alcohol and codeine

    Hi, im just looking for some advice about having a bit of a drink whilst taking codeine. I take 30mg 4 times a day since having an ileostomy and i havent drank since march when i was put in hospital but with christmas coming up I am hopefully of being able to go out with friends and have a bit...
  17. robbo87

    On the waiting list!

    Just been to see my surgeon this morning and he's told me that he's going to put me on the waiting list for my reversal in the hope that it can be done in the summer, so things will have had a year to settle down. I will need some form of "look up there" as he fittingly put it, either in the...
  18. robbo87

    Fitness advice

    fitness advice Hey, Just looking to see if anyone has got any tips in regards to getting fitness back after having surgery? I had an emergency resection in april and then an ilestomy in july. I came home at the end of july but since then i've done a bit of swimmin and a lot of walking. But...
  19. robbo87

    Seasonal effect for crohns

    seasonal effect for crohns Hi, this may be a long shot and possibly a complete coincidence, but does anyone find that they start having problems during particular times of the year? Ever since my diagnosis around 3 years ago... If I do have a major flare or have problems it always seems to...
  20. robbo87

    Liver function

    Not really sure if im posting this in the right place... but anyway, I've had a copy of a letter from my gastroenterologist this morning telling me that i have "quite markedly deranged liver function" and also that my CRP is still highish at 76,mg/l (although thats a hell of a lot lower than it...
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