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Crohn's Disease Forum

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  1. C

    New member - query re urgency

    Check for triggers - foods specifically for me I told my Doctors years ago that potato was a trigger food for me - a couple of years ago I found out that the measlamine type I was being prescribed for decades had potato starch - switch to potato free capsules and life has been better less...
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    Sorry I need to vent at pharmaceutical companies - part 2

    Today I spent 45 minutes on the phone with a a very nice pharmacist going through my drugs to identify the ingredients My conclusions: Drug 1 - 7 manufacturers: 5 with starch and no information on which starch it is derived from. 2 had no starch at all but only one is available on my drug...
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    ran out of Lialda for a week.....flare

    I am so sorry I hate to say this but being without Lialda did not help Sorry about your vacation - it is so hard for others to understand I had a similar situation and luckily I got my Dr to call in script and then I had my wife drive to some way out pharmacy to get the drugs. Being a guy I wait...
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    Sorry I need to vent at pharmaceutical companies - part 2

    I hope someone from a pharmaceutical company reads this in the hope that they realize the negative impact on what they call inactive ingredients are on patients So today I was informed by my Doctor that at least two of the tablets I am prescribed contain potato starch. One of the tablets I...
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    Undiagnosed with thickening in loops of jejunum

    I am having issues too I had a camera a few months ago and nothing was found. I also did a cologuard test last year and that did find signs of cancer - however my Doctor could not find any symptoms - I am scheduled for a CAT scan soon to see the results May be you could ask the insurance...
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    Worried about my academic future with Crohn's

    I will give you the old mans perspective - I was diagnosed at 24 - I am now in my late 50's. Has it stopped me from doing anything that I wanted to do - not really. Yes I have had to adapt - yes may be I got a little creative but you push on. I have a wonderful supporting family, great friends...
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    Stomach pain after taking Imuran

    I really think you need to chat with you Doctor
  8. C

    What are your SAFE and UNSAFE foods?

    1 Crohnie 2 Wheat/ grain, potato, chicken, banana, plantain, 3 Rice, beef, pork, cucumber, spicey food, coconut
  9. C

    What Career/Job Do You Have?

    I work in IT for a company that produces toilet paper and adult diapers - I am prepared :)
  10. C

    Can inflammation be silent??

    Unfortunately it is too easy to blame yourself for eating the food I still wonder if I had looked after myself better when my symptoms started developing may be it would not have been so bad I also understand wanting to stay off the drugs too. Yes when my GI looks at the results I get told to...
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    What are the long term issues with prolonged inflammation, however mild or severe?

    I believe it is not good - scarring occurs the inflamed area can not function eventually I also believe that it can be controlled I also believe everyone is different in what triggers inflamation In my case I had crohns from the large intestine downwards - I went to see a surgeon to fix a...
  12. C

    With Alternative Treatments - Advice needed

    It is very difficult to know the answer - I have tried quiet a lot of stuff over time with varying success and a lot of money spent At the moment I am on krill oil and ubiquinol + organic India products bowel care, neem, triphala, asch.... that has stabilized the frequency and it is been...
  13. C

    B 12

    I lost my colon and a bit of small intestine and my B12 levels are fine without shots or supplements So you never know Cog
  14. C

    How do you know if you're in remission?

    For me it is just being on bactrin and colestipol only not having to use other meds. And the gut is not being too erratic and I am keeping to my diet I did have a 5 year spell after a colectomy - looking to beat that personal record again :)
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    Organic or none processed (but no energy)

    Keep a log of your food in case you are allergic to a food - that will drain your energy quickly If you drink alcohol (in moderation) and feel even more drained this is big sign of a food allergy If I eat wheat it drains me, potatoes the same I think you can still eat healthy with little...
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    Colon removal

    is your issue the big d and frequency? looks to me that no crohn's meds work so is it something else ? look at bile salts if the answer is yes I have had a colectomy and life is better - crohns meds work for me good luck it is a hard decision - make sure laproscopic surgery is an option
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    Jobs you have held....

    Clean a soap factory Meat factory Stores man Filing Clerk Buyer for oil company Consultant SAP Consulting Manager Senior manager IT Systems analyst - for toilet paper manufacturer - yes I get cheap product :)
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    Sigh... Surgery Questions

    The remicade was an infusion for a couple of hours I have had no issues for 7 years since first (of 3) remicade treatment - I have not had remicade for 7 years either I had no surgery for the fistula - lost my colon but that was for the crohns/ cancer On the bile salts - having gall bladder...
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    Sigh... Surgery Questions

    Welcome to the forum My experience when I had a fistula the size of a dinner plate - they gave me flagyl - I hate the stuff - cleared up a bit but not completely - no surgery Then I got Cipro from a different GI that was much better - but stil not !00% Then years later I got remicade for the...
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