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Thanks everyone your replies have made me feel a little better. I suppose once I have my head around it I will cope so much better, I suppose I am still at the 'I don't understand' stage. I feel angry, upset, guilty, sad etc etc pretty much every day at the mo but I know I will get there...

I was diagnosed in November 08 so all new to me. I have been reading through everyone else's threads and there seems to be lot's suffering far far worse than me. Does everyone get this bad eventually? How long have you all had Crohn's. I am finding it so hard to come to terms with as I am and...

I am the same, I have not had a solid poo for over a year and suffer symptoms every day. Diagnosed in November and meds not working

This is exactly how I feel. I am currently putting on an act for everyone as nobody seems to want to hear that I feel crap but I do! How do you all find work? Mine are awful and it is making me feel worse

How do you all find work? I have been put on a stage 1 sickness warning (2 episodes, 1 9 wks certified plus 1 day uncertified but both Crohn's related) plus 2 days when I had a sigmoidoscopy (had sedation so could not drive the next day) they have threatened me with a stage 2 if my sicknes...

I feel they don't listen to me, I suppose I need to be a bit more forceful. I have done pred for 5 months in total with the highest dose being 70mg. I just seem to have ALL the side effects and I was more miserable on it than at my worst with the Crohn's symptoms

Having another really bad day, really scared to ring my nurse as I just know she will want me to go back on Pred and I really don't want to!

OMG and I thought I was suffering! So sorry to hear what a nightmare you have had

Hi all Thanks for your replies! I am from the UK and I am 26 years old. I am currently on 4800mg of mezavant and 250mg of azathioprine. Was on 70mg of pred each time to start with. At my worse I was going to the loo 20+ times a day, heavey bleeding, lots of pain etc my symptoms are a lot...

Hi All I am new to hear and new to Crohn's! Diagnosed in November, so far I have had two lots of steroids (Pred) took the first course for 10 weeks alonside mezavant then when I stopped them the syptoms came back so they put me back on them. Just finished (on Tuesday last week) another 10 week...