Dislike of crohns

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merrywidow

merrywidow

mum with a dogdy tum
Joined
Oct 10, 2007
Messages
3,189
dislike of crohns

i am seriously taken a dislike to crohns, its starting to get me down now.sharon xx
 
Me too... It's not like something like cancer which people understand. You say Crohn's disease to people and they go "what's that then?". So when you start explaining they go off the idea of knowing, and you dont get much sympathy.
Bah humbug. It's a poxy horrible disease.
 
the meds are ok jed. its family and "friends" that ask "hows you?" then change the subject when you tell them your feeling crap. if they dont want a honest answer why bother asking the question?
at least i can tell the cat, he dosent walk away or change the subject.
sharon xx
 
merrywidow said:
at least i can tell the cat, he dosent walk away or change the subject.
sharon xx
Click to expand...


You're lucky to have such an understanding cat...mine couldn't care less.
 
Our dog, Border Collie, comes up to me too if I'm crying. Nudges his nose into my face and looks like he wants to help. Silly old sausage. When it all gets too much I go for a doze with a Teddy Bear. Doesn't solve anything, but at least I tend to feel better.
:)
 
i got fed up with saying "im fine" when i aint. why should i have to say that? just so peoplee dont feel uncomfortbe?
animals have a much better understanding of us humans, .
sharon xx
 
I think people may not know what to say to us.
If they ask how are you', I think it's thier way of letting know they didn't forget that you aren't always feeling well.
 
I think some people want to understand and really try to understand, but unless they have walked in our shoes, that can't possibly understand what it's really like. My husband doesn't even get it!
 
I know the feeling! Sometimes I just wish I could feel "normal" again. I can not remember the last time I woke up & my stomach did not hurt. I went out with a group of friends last night & they asked how I was doing, so I shared, & they all just had this "I'm sorry" look on their faces. LOL They try their best to understand, they just can't. Unlike when they are "sick, it goes away, for us, being "sick" is a way of like.

Keep your head up darling!
 
I think "How are you?" is just a general greeting now - much like "Hi."
I hear "How are you?" more at work than I do "Hi." We say it in passing and people keep walking without even waiting for an answer. If I am good then I will say so, and if I'm not then it will be more like an "Uh, I'm alright..." or "I've been better."
Then people who really want to know will ask for more details, and people who don't want to know won't.
Honestly - there are some people at work that I don't care how they feel, and I don't care if they care how I feel either.

Anyways - I thought you had been feeling okay lately. What's the matter? How are you?
(You can really answer that one, haha. I won't ignore you or walk away or change the subject.)
 
Oh I know what you mean MW!
People ask but ...do they really want to know?

I got myself into the habit now of when someone phones and asks how I am
I say "Fine thank you" and be done with it....
because I think it is a form of a greeting rather than really a need to know how I am.

When I'm feeling really bad and in need of comfort
I go to my hubby, or one of my kids, or grandkids and just say..."I need a hug" :)
And it has been proven hugs to really help!

So....I'm sending you a ton of
healing hugs. :)
 
merrywidow said:
i got fed up with saying "im fine" when i aint.
Click to expand...

In the movie Tombstone Val Kilmer's character, Doc Holliday, has tuberculosis. When asked casually, "How are you?" he responds cheerfully, "I'm dying. And you?"

I use that line from time to time.
 
I tell plenty of people I feel lousy, and I have absolutely no doubt a bunch of them think I'm an a**hole.
 
if i don't feel good, and get asked how i am.. i usually reply "don't ask". if they're genuinely interested, they'll enquire further. if their question was purely out of politeness & they don't want to know, they won't.


however...... (halo slipping a bit here lol), i do have a different answer for those telephone sales callers who start the conversation with "how are you today?". i go into a long list of mostly invented gross symptoms that i'm 'suffering' with :D i just wish i could see their faces as their eyes glaze over......
 
regarding cats..lol yeah it's very sweet when they sense something.... years ago when i was a teenager, i has a cat, called him psycho Max because he wasn't very nice, not affectionate at all and just a lil shit sometimes lol.... anyway, one day i was crying about something and sitting on the floor.... and he walked over to me, then crawled in my lap and just sat there as if to comfort me.... sweetest moment ever cuz this cat NEVER did ANYTHING even remotely affectionate towards people.


beth said:
Our dog, Border Collie, comes up to me too if I'm crying. Nudges his nose into my face and looks like he wants to help. Silly old sausage. When it all gets too much I go for a doze with a Teddy Bear. Doesn't solve anything, but at least I tend to feel better.
:)
Click to expand...


haha awww cute, my mom has the cutest dog... pretty much a pup still... well, when i had my horrible flare in december, seems she couldn't sense my pain at all and would always jump all over my stomach LOL.... that was PAAAINFUL... but she's so damn cute, i couldn't get mad, she just wanted to play and didn't understand that i was sick. haha
 
as for telling people how i feel... i only tell people who sincerely want to know, they initiate it with me, by asking me specific questions... and when i tell them, i keep it brief.

as for the more detailed stuff, i just tell my mom or tell a couple of close friends who really care and are there for me.... but i prefer telling my mom.


fortunately i've been feeling very good lately. so i can't complain.
 
My Butt Hurts said:
Anyways - I thought you had been feeling okay lately. What's the matter? How are you?
(You can really answer that one, haha. I won't ignore you or walk away or change the subject.)
Click to expand...
been rough since xmas. having a enescope tomoorow because of the excess anul bleeding. they will say "crohns flare up" but i hope they dont take that bit away. i dont use it, but its my bum and kinda like it.
shaon xx
 
This is exactly how I feel. I am currently putting on an act for everyone as nobody seems to want to hear that I feel crap but I do!

How do you all find work? Mine are awful and it is making me feel worse
 
merrywidow said:
i dont use it, but its my bum and kinda like it.
Click to expand...

awww i know. thats how i feel about my colon right now. i dont want them to take it and just throw it in some waste bin. its mine. i would miss it.
yes even though it makes me feel sick.
 
merrywidow said:
been rough since xmas. having a enescope tomoorow because of the excess anul bleeding. they will say "crohns flare up" but i hope they dont take that bit away. i dont use it, but its my bum and kinda like it.
shaon xx
Click to expand...

I know the feeling Sharon, I'm kinda attached to mine too...

It's funny, My wife and I were having a discussion before my surgery about peoples reactions to it. She said I should treat it like any part of my anatomy thats being amputated. Just because it's not seen, doesn't mean it won't be missed.

Also, on a side note, it's amazing how many of her freinds have asked her about her sex life since I got bagged..!!!
 
When I'm in bed with a stomach ache, both of my cats will come and lay right on my belly, its really nice, like a heating pad.
right now i'm in a lot more pain than usual, but i dont have a doc so i'm just waiting, taking it easy, not working, and hoping my referral goes through soon!
I generally just avoid people when i'm feeling like this.
 
Thanks to everyone for sharing their experiences. Now I don't feel so alone when people seem indifferent to me. This is such a lonely disease. I also feel like I have permission to crawl into bed and snuggle with my magical cat :))
 

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