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Today is my 29th remicade infusion. Hooray! Good thing I came to post this, I completely forgot to set out my premeds until I read a bit of this thread. After my last infusion, I treated myself to cupcakes from the best bakery in town. Not a habit I want to start, but I think I am going...

I really can't say which to do first. I do know that one thing you said is not correct - you CAN try Remi if Humira fails you. Humira worked very well for me, but only lasted 5 months. I started Remicade after that and have been on it for more than 3 years now and am in an awesome remission...

It sounds like the same thing to me. I have one, but my gyno nor my GI have seen it. It's teeny tiny. They said if I have the symptoms that belong with it, then it's there. Are you leaking air out your vagina? Have you seen any stool up front? I don't think there is a better test than that.

I got infusion #23 today, and everything went fine. I'm still at 400mg and 8 weeks, and I'm not sliding inbetween infusions, so I am optimistic it will continue working for a while.

I just had infusion #21 a week ago. I was having some symptoms reappear 3 days prior, so I will keep a watch to see if I slip close to my next infusion as well. I'm still at 8 weeks apart, and only 400 mg (ml?) so I still have plenty of room to adjust if need be. The good news is, it only...

This is a great tip that I wouldn't have thought of. What was the dose? I just had my 3 year Remiversary on November 10th, and I always wonder how long I will have until it will stop working.

WooHooo! Infusion #20 went well today! Please keep working, Remicade. Thanks!

I got mine from Curascript 3 years ago. Not sure if you can request them, but I don't remember having any problems with them. I know I couldn't pick it up locally though.

I have been so tired lately, I asked my GI to run blood tests for me. I posted the results for my Crohn's friends to see and they mentioned that there was no check for vit D, and a lack can make you tired. A friend of mine takes 5000 daily, but I hadn't had a chance to research it, so I just...

He said that is her department, lol. I guess if I was complaining about it, they'd be in a hurry to fix it, but I am willing to live with it as is if it doesn't get worse. The way I see it is like 2 garden hoses next each other, and a hole through from one to the other. If you duct tape one...

There was a thread on this a few years back. Someone wrote that since a flu shot increases your immune system, they always flare after getting the shot. I don't get mine anymore, but most people seemed to think you still should. I will see if I can find that old thread. edit - Ha! Well...

This is great thread. I guess I am confused on the recto-vag fistula. I assumed that I had one, since I was leaking a teeny bit of stool out my vagina. I also leak air through there when I feel like I am going to fart. Definite hole from rectum to vagina, yes? I told my OB/GYN, and though...

A friend of mine with Crohn's (not on this site) is strict paleo and says that it is helping his symptoms tremendously. He is still on Humira though, so it is not diet alone. I haven't considered it because I like my cookies and breads too much, but if my meds weren't working, it is somthing...

I never felt guilty back when I was very sick. The kids will be happy if you are snuggling them on the couch or if you are running around the yard with them. They are very resilient. Your new little peanut is adorable, congrats! I hope the Cimzia works for you. I'd honestly go for a...

Mine tasted just like Crystal Light lemonade. It wasn't bad at all, except that I don't like diet drinks so much.

I got a terrible sunburn when I was on it. I am sure side effects vary from person to person, but I would protect my skin for sure if I were you.

I used a short plastic cup. I could hold it around the back, so I could still pee out the front. No mess at all.

I agree with trying some of the supplement drinks. Boost was too thick for me, but I like the flavor of the Carnation breakfast packets. You can mix it with any kind of milk if cow's milk doesn't agree with you. I mix it with soy. I added flavored coffee creamer to mine when I needed to put...

OO! OOO! I KNOW! Remission is so amazing. I think it is different for everyone though, just like our symptoms and our treatments. For me, my biggest issue was frequency and urgency. Now I am only going 1 - 3 times a day, and it means that I have more time to get to the toilet. I used to look...

You hold it down for the whole time. There is a video on www.myhumira.com that shows you exactly what to do. I never did my own shots, my husband always did, and though it hurt like hell - I would do those shots twice a day if I had to now that I am in remission. Maybe your awesome bff would...