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Crohn's Disease Forum

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  1. K

    So confused after apparent relapse

    Thanks, Guerrero. I always knew it was a possibility for the Crohn’s to come back at the same location, but after 10 years of remission, I guess I was in denial that it could happen to me. I’m glad to hear you’re doing better. My doc finally got back to me and he prescribed a 5 week prednisone...
  2. K

    Colonoscopy prep question

    Seems reasonable. I don’t think anything three days ahead of the procudure would be a problem.
  3. K

    So confused after apparent relapse

    No, I have not, but it’s definitely something to consider. So, maybe I had inflammation that caused ulcers and now the inflammation is down but the ulcers remain, and my gut just needs a rest in order to heal? I swear, I don’t know why this is so hard for me to figure out. 😄 Thank you.
  4. K

    So confused after apparent relapse

    Hi everyone. So I was diagnosed with Crohn’s in 2007 and started on azathioprine, and then we added Remicade in April of 2014 when I developed a partial obstruction from stenosis in my terminal ileum. My GI hoped it was just inflammation and would respond to the Remicade, but by August I was...
  5. K

    Burnt tongue?

    Are you certain it's related to the prednisone? You can get this burning sensation from B-12 and/or folic acid deficiency.
  6. K

    Starting Remicade Soon

    I've been on Remicade for two years now. The Benadryl used to make me fall asleep but I don't premeditated anymore. Still, just laying there for 3-4 hours can make me sleepy. I take a book or watch a movie on my iPad. It may sound funny but I actually kind of look forward to my infusions for...
  7. K

    Weird Itching

    http://www.mayoclinic.org/diseases-conditions/itchy-skin/basics/symptoms/con-20028460 All-over itching can be a sign of serious illness. It may be nothing really, but you never know unless you have it checked out.
  8. K

    Remicade and skin trouble and shoulder pain

    I've been having what I thought was a mild bout of shingles on my left shoulder blade since December 2014, 7 months after starting Remicade. It started out with what felt like really bad muscle pain and a single strip of little water blisters running diagonally down my shoulder blade. At first...
  9. K

    Possible new treatment for Crohn's

    "The study, reported online Oct. 5 in Nature Immunology, shows that the receptor helps regulate intestinal inflammation in mice and that its activity can be manipulated, offering a potential new target for treating certain autoimmune disorders, such as Crohn's disease and possibly multiple...
  10. K

    Food you ate when you got home post op

    I'm only eating home cooked beans and I'm tolerating them very well. And, yes, portion control. The first few weeks I really only ate a few bites at a time. Little bits of food filled me up quickly. I'm still eating less, six weeks later.
  11. K

    Food you ate when you got home post op

    I had a small bowel resection with three strictureplasties on August 8th and I don't remember my first few meals but I can tell you I had carne asada with pico de gallo within the first five days and had no problem! My surgeon told me I had no food restrictions upon discharge so I went for it...
  12. K

    Do I really need Remicade?

    I've been on Imuran since I was diagnosed almost eight years ago and basically thought I was in remission, with an occasional small flare. My symptoms were very mild until this past January when I started having obstructive issues. I had no idea of the damage that was being done by the...
  13. K

    Stricture is gone - can I eat raw fruits and veggies now?

    Hi Steph. It's been six weeks since my surgery and I've been eating pretty much normally since the first week - just in much smaller quantities. I feel about 90% better but I still feel partially obstructed at times, so I'm being careful with insoluble fiber. I'm still peeling most fruits and...
  14. K

    Carrot juice for Crohn's Disease and IBD

    My favorites are carrot, orange, ginger and 1/2 carrot 1/2 coconut milk sprinkled with grated nutmeg. I practically lived on the last one before my resection surgery when I was on full liquids.
  15. K

    My guts sound like...

    My gut gurgles and growls terribly. I don't even know how to describe it except loud. I was serving on a jury once and it was particularly loud that day. The defense attorney was giving her opening statement. The courtroom was dead quiet except for my gut gurgles, which were practically...
  16. K

    Simple low-fibre meals? I'm fed up of eating...

    I second the miso soup. Yummy, nutritious and satisfying.
  17. K

    Is lower flank pain possible with Crohn's?

    I had such bad pelvic pain before my resection I literally couldn't walk. My surgeon was expecting to find adhesions or something to explain it but he just found the strictures. He told me that visceral pain is unlike the pain you'd have in, say, your arm, where you can exactly pinpoint it...
  18. K

    Nothing tastes good, don't want to end up back in hospital

    I'm glad to hear you're doing well, UnXmas. :)
  19. K

    Dude, your IBS is not like my crohns!

    I'm seriously considering making a graphic of my resection scar and putting it on a t-shirt with the words "Ask me about my zipper scar" to raise awareness of IBD. I want people to understand what this disease is and I want it to get some serious attention before I (or any of us) have to lose...
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