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Crohn's Disease Forum

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  1. JBMouse

    my Ophthalmologist has tunnel vision

    Hi, Sorry to hear of your on-going problems, I, too, am a very long term Crohn's patient, diagnosed at age 9 yrs, now nearly 70 yrs. young! My Gastro and other doctors recognise that Crohn's is an immune system problem/failure, and becuse of that, we are prone to other inflammations, but...
  2. JBMouse

    Anastomosis stricture

    Cannot understand why I have not been on this forum before! but here goes. I had a balloon dilation 8 months ago for an anastomosis stricture, an ileo-rectal join that was made 40 years ago when I had my colon removed. I have had Crohn's for 60 years, and that was the only surgery I have had...
  3. JBMouse

    Considering Crohn's Resection Surgery

    To give what is a simplified answer to 360wellness, do not be unduly worried if you are being offered a resection to just cut out the stricture, you will only lose a very small part of the ileum, and benefit from being able to eat a less restricted diet, and reduce the liklehood of emergency...
  4. JBMouse

    Balloon dilation- frequency and effectiveness

    I cannot get the search function to work, so I am starting a new thread in hopes of getting answers, or links to earlier threads. I have had Crohn's for 60 years, and only needed an operation in 1979, so that's 40 years ago. I had a sub-total colectomy and an ileo-rectal anastomosis, with a...
  5. JBMouse

    What vitamins etc with a NO vegetables diet

    I have had Crohn's for 58 years now, and my one and only op was 38 years ago when all my large bowel was removed, with the exception of the rectum, and joined to the small intestine, which was, itself, shortened to cut out the active crohn's. (Hemi colectomy and ileo-rectal anastamosis) I have...
  6. JBMouse

    What to expect ??

    Hi, Don't worry, the surgeons know what they are doing. I don't know where you are in the world, but, if like me, you are in the UK, then the NHS is fantastic. If you are attending St. Marks in Harrow, so much the better. I had a very similar op 38 years ago, I have had Crohn's for 55 years, and...
  7. JBMouse

    Azathioprine and infliximab

    Hi, Good luck with the Azathioprine and Infliximab. I have been on them both for 4 years, and almost immediately I felt better, and my old fistulas became less of a problem, and have basically dissapeard. I am 67 yrs old, and have had Crohn's since I was just 9 yrs young, so believe me when I...
  8. JBMouse

    Eating with stricture - what should I avoid?

    For me the no no's are cellulose matter, i.e. vegetables. Mushrooms are the worst! Look at the cell walls of the veg, if there are large amounts of cellulose cell walls , avoid. Some veg, if well cooked, mushy, may go through. Everyone is different. My Gastro consultant says his Crohn's patients...
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