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Since then I had the surgery during Covid and stature in Entyvio. Been feeling great since then and just did colonoscopy and all looks great still with Entyvio. Feeling much better and for the most part symptoms so much better. I didn’t have a stricture that was too long so not having issues...

I started Entyvio about 6-8 months back and after a few months started to feel better. In July my GI did colonoscopy and it looked great. About 90% improved from when Stelara was not stopping inflammation. Only problem is one short stricture in the ileum near the terminal ileum. The scarring is...

Thank you for all the information everyone. Right now doctor says we have to get it into remission before any surgery discussions so started Entyvio and taking Budesonide in the meantime since they say Entyvio takes awhile to begin being effective. Once that is done I'll discuss options with...

Glad to hear you are feeling better. I was curious because your post sounded a little similar to what I'm going through but I just started Entyvio. Did you have any adjustment issues when you started with this? I just had my first infusion and going back next week for number two. I had been on...

No, it’s another anti TNF like Remicade so not sure if that is why my Dr hasn’t suggested that.

Just started talking with my Dr about trying Entyvio because I have already been through Remade (two years of working then nothing), Stelara (apparently never worked for me) and, of course, all the other early diagnosis fails with Budesonide, etc. I have Crohn's only in my terminal ileum and it...

That is great information - thank you so much!

Yes, that’s what I noticed. Thank you for some positive news on a distressing day!

Thank you - that is good information! I am not sure if I technically qualify as early surgery since I was diagnosed 10 years ago and have gone through Pentasa, Budnesidone, Remade and now Stelara but fingers crossed.

I just had a colonoscopy that showed that Stelara is not working for me. This is only a year since Remade stopped working for me after working for only a couple of years. My doctor mentioned that we should also consider surgery at this point since biologics don't seem to be working for me. He...

Does anyone else get GI reactions the first week or so after injections? I’m trying to determine if it is actual Crohn's or the drug. For something that seems to be helping GI issues I continue to see a pattern of GI side effects immediately following dose. I tend to have a few days of...

I have been on Remade for about 2.5 years and it worked great at first but about the last 6-8 months I noticed symptoms more persistent again and my ferritin was very low so Dr did colonoscopy and said there was inflammation. Not as bad as before Remade but bad enough. Going to get the blood...

No help in regards to those symptoms. GI doesn't think it is related to Remicade. Just told me to keep taking and suggested probiotics for stomach issues since I was on antibiotics for skin infection. He still wants to send me to my primary physician as it isnt GI related. Now waiting on...

I have an appointment with GI again tomorrow. Maybe he will listen if I pay to go to his office. Have called his nurse with these symptoms before and they just put it in my chart and say it isn't related to Remicade and I should go to my PCP for unrelated symptoms! I had one additional...

I have started to have some new symptoms and my GI doc seems to dismiss as having no relation to starting Remicade less than 3 months ago. Afraid I have some new issues happening but wondering if maybe others here have experienced anything similar. First two infusions I experienced some fatigue...

Thanks - sorry you are going through that too but also glad I am not crazy or have some new health issue to worry about! I have become so frustrated with all the new side effects that my GI dismisses that I also posted another thread here just in case nobody on this thread had similar issues...

Has anyone experienced ankle edema? I have never had it in my life now shortly after my 3rd infusion my socks are leaving deep marks on my skin. I also have neuropathy in my right foot - started after 2nd infusion. B-12 low normal so tried shots and it helped a little but over a month after sky...

Has anyone experienced ankle edema? I have never had it in my life now shortly after my 3rd infusion my socks are leaving deep marks on my skin. I also have neuropathy in my right foot - started after 2nd infusion. B-12 low normal so tried shots and it helped a little but over a month after sky...