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Thanks so much for this info...sounds like you also have been a lot. Its been a lot of trial and error figuring out what M can tolerate so I really appreciate your suggestions

Oh wow..M unfortunately can't drink the boost or ensure's because it really sends her in a flare..I'm guessing lactose intolerant? What foods have you found that your daughter seems to do well with?

They have taken her off all her previous meds and now only have her on Azithromycin and a Probiotic

Thanks Sandyute..it's been a long ride and I know it's not over as M is having a terrible morning. She's so done with all this..Something still tells me the doctors are missing something because her heart rate is staying around 140ish and she is getting UTIs now..(never ever had had one) and...

We finally got a diagnonis!!! Ends up M has Idiopathic Gastroparesis...only took 4 yrs and a WHOLE lot of testing, but we finally got a piece to this puzzle!

So we went today for biopsy results and MRE results and...all is normal. Ughhhh! I just want to scream. Not that I want something wrong, but I want some answers. Next step is pill cam on the 24th and then some kind of "dump" test. They finally agreed to put her on Elavil after I about...

Funny you say this because my daughter has been in a "flare" for a month and after her scopes was the best I had seen her in awhile. I was wondering the same thing.

Had her MRE this past Thursday so hoping for some answers soon

Thank you! I thought it was kind of weird for him to test after a clean out..

Confused and hoping someone can answer..15 year old had calprotection test on 4/20 and results came back at 636ug..Doc ordered EGD and Colonoscopy..retook calprotection test while performing colonoscopy on 5/13 and results where <16ug..my question is, can a proper test be performed considering...

Thanks...comforting knowing we aren't alone in all this..

New to all this, so I'm guess we are joining the frustration train. Daughter 15, has had chronic abdominal pain going on 4 years now. Progressively getting worse. GI says functional abdominal pain..then IBS and now testing for IBD. claprotection levels at 636 on last test, lymphocytes low, RBC...