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Been in a flare for around 6 weeks. Uceris helps but kinda noticing symptoms after tapering down the Prednisone. Any advice? Really hope the stelara starts working again.

Lol. Ok. Of course. There is a distinction between prednisone and budesonide though. The time to response is different. Was asking about personal experience.

Thank you. Yes that's what I assumed. How long does it take to see a response from either?

Has anyone noticed that Uceris works better than entocort? When I was first diagnosed entocort worked like magic. However when I had a flare I noticed it didn't work well and Uceris worked better. With my current flare entocort doesn't seem to be working and I'm switching to Uceris. Have any of...

Yes you are right. Hopefully every 4 weeks injection works again and that I don't have antibodies. May consider doing a loading dose of stelara. Don't want to be on Prednisone for too long.

Yes it is complex. Hoping that this flare gets under control going back to every 4 week stelara..

Yes I am now on every 4 weeks. I remember similar thing happened years ago and I controlled it. Just afraid it won't work now. Seems a little more symptoms now than my last flare. Don't want to be on oral steroids too long. Entocort doesn't work but I'm hoping Uceris and oral Prednisone will...

Anyone have experience controlling a flare while on stelara? Been in remission for 7 years. I had a flare a few years ago and managed on steroids. This seems severe. Going on 3 weeks. Happened when stelara dosage was extended. Very concerning. Hope I can stay on stelara. Worth asking for a...

Kinda in the same position. Even had a recent good scope but now flared. Kinda scary to have a real flare after being stable for so long and essentially forgetting you have Crohn's.

Hi, I've been on stelara for around 7 years and last colonoscopy few months ago was completely clear. However, Recently I extended out my injections from q6 weeks to q8-10 weeks and developed a flare. However, my calprotectin levels are normal. Seem to be better on a short course of steroids...

I have been on Stelara for almost 5 years. Initially every 8 weeks, then every 4 weeks, now with symptoms controlled I am at about every 7 to 10 weeks. Over the past few years they have found a cyst on my pancreas, which is stable but worried that it is premalignant ( not sure if coincidence or...

I have a weird pancreatic cyst/neoplasm that is probably premalignant. Was found a year or so after diagnosis. Not sure if coincidence or not. Now about 5 years after starting and wondering whether to taper and discontinue stelara. I'm not really sure that Stelara is doing much as I have not...

I think that Stelara does cause headaches. Tylenol helps, but may require something stronger to break the headache.

Thank you for your reply. Yes, I am getting a second opinion. They are not even sure if I have pancreatitis. It's basically a pancreas cyst in the uncinate process. They aren't sure if there is pancreatitis, as most of the pancreas looks fine. They found the lesion about 2 years ago, and I...

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Hi All, Over the past few years I have been monitoring a pancreatic lesion. They say its either a cyst or a branch duct Intrapapillary Mucinous Neoplascm (IPMN). When I spoke with my GI doc he said there may be some low grade pancreatitis causing this. Anyone have any experience with this? My...

Lol. Thank you for the advice. May try to supplement.

Anyone have any experience with Modulen? I am going through a mild flare right now and thinking of trying this out. How is it used? Is it better than just a protein shake like ensure?

Maybe coming off the prednisone was not related to the flare? 3 years after stopping prednisone does not seem like it may be related?

Anyone worried about the coronavirus and being on stelara?