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It breaks my heart to read your story. Have you heard about the Specific Carbohydrate Diet? It's being used at Seattle Children's hospital to treat Crohn's in children. https://www.nimbal.org/ I am NOT saying you should stop all of your son's meds. I'm just saying that this could be something...

https://www.seattlechildrens.org/clinics/gastroenterology-hepatology/research-and-clinical-trials/

Also, I heard a rumor that Seattle Children's Hospital is trying to do a study where they blend SCD-approved foods into smothie form to see if it can induce and/or maintain remission.

I eat a blended smoothie every morning for breakfast. It's pretty near liquid I found a recipe I like from a guy with UC on YouTube. I could find it back, if interested. I also eat a lot of soups. Sometimes I puree them, but always have well-cooked veggies. When I had a flare up this past Feb...

Thank you for sharing about this, I'm curious to read the links when I have some breathing room in my life. The pharmaceutical industry is not honest, that much I know.

Also interesting. I eat dark chocolate every day en lieu of coffee, and it's sat just fine with me. I have had the sensation that it's something I actually need--mostly for my mood and alertness. But this article brings up an interesting possibility to me.

I'm so sorry to read your story today. I'm a praying person, so I will be praying for you to find peace and a fresh meaning for your life. I am a musician, too, and while I can still play and sing, I haven't done much in years and I've been sad about that recently. Praying you can find new...

Oh no need to apologize, it's good to see people chatting :)

I came to chat about the weather, and got more than I expected. ;) I'm sorry for the poor relationship experiences. I'm sure I'm not an easy woman to live with, but not all women are about nice cars or what-have-you. I'm definitely not into expensive cars and frills. To us, it's about all of us...

Yes, that constant pain thing! That was me once, "Oh, I'm NOT supposed to feel all my food moving through my body all day? Oh, I'm NOT supposed to have back pain from my childhood up? Oh....." I wish I could say all my pain was gone, today is a "not so good" day for me, but...at least I have...

It's all good, you're allowed to vent. Well, sometimes it can take time to find the right therapist. Trying to find someone who can help you learn the skills to cope better with your phobia may be the best route. Ask around, call people, ask if they can teach you some skills in a timeframe of...

So sorry this has been a struggle. Eating feels like a minefield when you have a GI disease. On the one hand, we have access in the U.S. to some of the best docs in the world, which is a gift, but on the other hand, our medical system is slow and burdened. We really don't have as many doctors as...

Hey there, everyone. Has anyone tried to use Larazotide as a treatment for their Crohn's, or as a part of their treatment? What was your experience? My kids' doctor mentioned it today and I'm curious.

There's a chance you were experiencing symptoms of heat stroke: https://www.mayoclinic.org/diseases-conditions/heat-stroke/symptoms-causes/syc-20353581 Talk to a doc about that possibility as well next time you see one. If your GI tract is already stressed and inflamed, and then you add...

*hat tip* thank you for the abstracts :)

Okay, well, that's weird, the link showed up as "Amazon.com" but it should still take you to the book "SOS for Emotions" by Lynn Clark

I liked this work for learning healthier habits for emotions: https://www.amazon.com/SOS-Help-Emotions-Managing-Depression/dp/0935111018/ref=tmm_pap_swatch_0?_encoding=UTF8&qid=1695231747&sr=8-1

Short answer is no: I'm not superstitious about places I got sick. It is normal to feel anxious or uncomfortable, however, in a place where you had something unpleasant happen. Once, on my drive to work, I needed to vomit, and I distinctly remember the spot I stopped and seeing it trickle...

I don't know that I have THE answer for you, but I will say that this is a chronic disease, and I think you can expect to become fatigued more easily and/or more often than other people. Have your iron and Vitamin B12 levels been checked? Both of these tend to be low in people with Crohn's. You...

Thank you! I'm glad you responded even if it's a year old. You never know when the person on the other end might still be looking for answers--and I am. :)