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Brilliant. Thank you for your reply. So you don’t think in your opinion it has anything to do with the medications he’s on? When looking them up online there’s mixed things about that they cause weight gain so it’s a bit confusing x

Hello, My son has been on the Injection ada since September and 6mp since around June/july. My son is 10 so obviously growing but he is gaining weight rapidly, 1 stone within 3/4 weeks. The hospital are saying it’s nothing to do with the ada and that it’s just the disease is well controlled...

Ok thank you for your response. how annoying, I thought that as everything’s normal he won’t need anything until he’s next ‘flare’. I will definitely call them back and ask about the switch. thanks

Update- had bloods done yesterday. (He’s not been on any medication for just over a week now) had a call from the hospital to say all he’s levels are completely normal including inflammation etc so no more blood tests for 4 weeks. they said he can now restart the 6mp.. me and my husband are...

I have no idea, they just called me today and said he needs to stop taking the 6mp. They initially said high enzymes in the pancreas and then said high amylase of 267. Sorry I have no idea what they mean half of the time.

Thank you for all the advise you have been giving me recently. It’s really helpful. I do have another question you might know the answer to… he has been taking the mercaptopurine since May 26th. He’s had 2 blood test since then and he’s inflammation markers have gone down to 17!! The best they...

Hi everyone! I haven’t wrote on here for a while as my son has been ok. He was on the medication ‘azathioprine’ and unfortunately either had a flare or they didn’t agree with him. We ended up in hospital for 13 days!! He was very sick and run down and inflammation levels were super high. He has...

Hi everyone! So everything was going ok with my son until the last stool and blood sample. He has been going to the toilet more often with blood in he’s stool more frequently. Still no stomach aches or any other symptoms. He’s level in blood they have said are slightly raised and he’s fecal cal...

Thanks everyone! I feel so much more supported when I ask a question on here. Thank you all so much!

I would like to try the een again but can’t get hold of anyone from the hospital at all. Do you think it’s worth me just going up to an and e and waiting in there to ask? That’s the only way I can think of getting in contact with them

Thank you for your response. It’s not streaks of blood it’s fresh red and if you was to cut your finger and let it drip on tissue it’s about 8-10 drips of blood mixed in with small blood clots and then also in the poo in the toilet. He is already anemic but only slightly from his last blood test...

Nope he’s on no other medication and nothing has been suggested. They didn’t choose to stop it but where he was unwell with his chest he wasn’t hungry so didn’t drink for the whole week. Oh no is that steroids? also with the blood is it normal for it to be in the poop for a couple of days and...

Hi everyone, my son has been doing well. He finished 8 weeks of modulen. Unfortunately a few weeks ago we had a week in high dependency due to a chest infection so he didn’t drink he’s last week. The dietitian weened him back into food over the course of 3 days. We have been going absolutely...

Hi everyone, my son has been doing well. He finished 8 weeks of modulen. Unfortunately a few weeks ago we had a week in high dependency due to a chest infection so he didn’t drink he’s last week. The dietitian weened him back into food over the course of 3 days. We have been going absolutely...

thank you for all the information! Will have a look into it all x

I need to read up more about it I think because I assumed he would have the modulen and then that would be it until the next flare up. The thing is, he has not shown many symptoms it was only that he had diarrhoea for a long time I took him to the doctors and he was c diff positive, 9 months...

He had a colonoscopy and endoscopy and an mri and has confirmed he has it, they said they would send the results but I haven’t received anything as of yet and haven’t had the biopsy results. They told me the mri found 8 cm and also inflammation in the large intestine so will hopefully receive...

My 9 year old son is 2 weeks into the modulen only diet out of 8 weeks. Does this mean he’s crohns is more mild as they started this instead of the steroids? Once he has finished the 8 weeks and hopefully gets into remission I’m assuming he won’t need any medication? Also I have been told he...