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  1. L

    EEN , proximal absorption , Illeum resting & Juicing

    Thank you, i will look into compleat chicken garden blend and maybe think about making it myself ..right now the best that works for me is ENSURE ...but i eat other stuff with it ...however ..when I eat that alone it really helps .
  2. L

    EEN , proximal absorption , Illeum resting & Juicing

    If the benefit of EEN is that it is a liquid that is proximately absorbed and allows the illeum to rest , Does that mean that I should Juice and drink vegetables like cabbage , carrots etc., instead of eating the whole food Or would that not let the illeum rest ?
  3. L

    Is EXTREME tiredness and napping a common Chron's symptom - & Entyvio

    Thanks , I hope so ..life is no fun being this tired So i'll measure my calprotectin again and I'll have the VA do another colonoscopy - been 6 months see where the inflammation stands ...if it has gotten worse Va is willing to infuse me with vedolizimab ...but I don't like the idea...
  4. L

    My VA gastro says Vedolizamab - But I've read it may not work ..Anyone know ?

    thanks for the reply - i'm going back on total diet of ensure EN
  5. L

    My VA gastro says Vedolizamab - But I've read it may not work ..Anyone know ?

    Thanks for the reply ? Does tylenol or aspirin or something reduce the inflammation and make me less tired ? What do you think of vedolizimab ...that's what they want to put me on
  6. L

    My VA gastro says Vedolizamab - But I've read it may not work ..Anyone know ?

    Very tired but diagnosed as mild to moderate chrons My Va gastro keeps saying it's the safest maybe because i have a stent in my heart ? Don't know So confusing. When I do the EN ensure nutrition ..the diahreaa goes completely away though calprotectin went from 169 -190 chron's diagnosed via...
  7. L

    Is EXTREME tiredness and napping a common Chron's symptom - & Entyvio

    Diagnosed with a milder Chron's case 5 months ago Lately I've just been extremely low on energy / tired and napping couple times a day My calprotectin score was Up from 169 to 190 They want to infuse me with entyvio ..but i'm reading that makes people even more tired ? Anyone have experience...
  8. L

    Diagnosed with a milder Chron's case 5 months ago Lately I've just been extremely low on energy...

    Diagnosed with a milder Chron's case 5 months ago Lately I've just been extremely low on energy / tired and napping couple times a day My calprotectin score was Up from 169 to 190 They want to infuse me with entyvio ..but i'm reading that makes people even more tired ? Anyone have experience...
  9. L

    Cronh's and Sleeping & Tiredness - common ?

    Thanks, saw him today and we are going to check everything in 30 days esr crp liver aic B D and all that stuff .
  10. L

    Cronh's and Sleeping & Tiredness - common ?

    I had bad diarrhea for 2 years prior to cronh’s diagnosis . After 3-4 weeks of consuming No sugar or breads or carbs - PLUS - heavy consumption of “Ensure” EN . I now have perfect stools well formed and colored. I evacuate only 1x every 2 days. However , I am sleeping a whole lot . I sleep 7...
  11. L

    New and seeking for experiences

    Mycotoxins are of interest. Unraveling crohn's disease requires explaining V. Kruiningen his observations. Cases of Crohn's disease tend to cluster within specific geographic locations and even within households. The sheer prevalence of crohn's disease requires an environmental explanation that...
  12. L

    New and seeking for experiences

    Reminescent of a recent post by poster Kiny about cytotoxins in food possibly causing problems. Maybe cytotoxins are less in organic foods.
  13. L

    New and seeking for experiences

    I think my case is milder than yours. I was diagnosed a few weeks ago after a long period of diarrhea. I tried eating what is considered a healthy diet and it tore me up. I ate lots of green leafy vegtables and everything considered ‘healthy’ - lots of fiber . The fiber killed me. Just made it...
  14. L

    How to determine if You are "Flaring" ?

    Well it seems like both infliximab and zedolizimab have only a 39% record of remission after 1 year though ...i wish it were better odds.
  15. L

    How to determine if You are "Flaring" ?

    So I saw my Gi guy today and it was easy to get him to order a calprotectin test for me . Just asked. I also have a primary care doc and I will ask him for crp and esr and probably liver tests to choose for a baseline . Can you suggest other tests besides these ones that I should try to get ? I...
  16. L

    How to determine if You are "Flaring" ?

    My only symptom seems to be diarrhea and ‘ I believe I had diarrhea for years before my cronh’s diagnosis , but I always assumed the diarrhea was due to me being a coffee-holic and would have diarrhea after coffee and cream. So is my only way to know if I am having a Flare is by checking...
  17. L

    How long can you stay on ENSURE/EN ?

    Drinking ensure or premier protein has helped a lot …my stools are often about 90% better since initiating the drinking of 3 or 4 bottles daily of EN. I notice there are prescribed, more expensive EN formulas Will my gastroenterologist be willing to prescribe it or can he ? I have both medicare...
  18. L

    Role of diet in prevention versus treatment of Crohn’s disease and ulcerative colitis

    Ummmm Do you cook the chicken breast first or the squash etc? Or do you just mix it all up just RAW ?
  19. L

    The decision : On Biologics or Not

    Thanks for your post , you seem the most knowledgable . I'm gonna hold off on the vedolizimab. The transfusions would be free cause it's through the VA . Think I will hold off on that for now - as drinking lots of Ensure as an addition to my wheat/diary free [except for cheese , I love cheese]...
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