Search results

It took a dose increase for us to see the difference. We've had three doses at the increased level. She has been on Stelara for 13 months. Hang in there!

Update - we are 1 yr on Stelara in May. My daughter is 12. We just had the BEST labs we have ever had and she is FINALLY feeling great. Honestly, the best she's been since diagnosis a year ago. Stelara is slow to get going and the road has been rocky, but I'm glad we stuck with it!

do NOT give up!!!!!!!!!!!!!!

Happy Birthday to Grace. I agree with Maya - systemic JIA is very distinct - I feel like it would have come up earlier too. I hope you all figure out what these troubling spots are!

Unforuntately Claire's calprotectin #s have doubled since last dose and her arthritis has flared as well. So frustrating. Her dose is increased to 60mg every 8 weeks. Fingers crossed.

:dance::dance::dance::dance::dance: Exciting stuff!!! Yay, for Izzi! J.

vtfamily - Doc didn't say anything about a build up in antibodies to Stelara. I guess I hadn't even thought about that being an issue! I'll ask. We increased to 60mg Friday without incident. I think she looks pale but I'm paranoid. :ybatty: We are back on supplemental EN because of the...

I'm so glad you posted this!

Brian's Mom & kimmidwife & vtfamily - I'm disappointed to report that we've had another dramatic rise in calprotectin (1156 this week) and arthritis flare in the ankle. Not sure Stelara will be our silver bullet. :-( Starting with this Friday's dose, we are increasing from 45mg to 60mg...

What a BEAUTIFUL sight!:dance::dance::dance::dance::dance:

I think you are right since it is approved for Crohns already. We started Stelara before Entyvio was released.

Just caught up on all this, K. Big hug & a lot of prayers! J.

It's hard not to immediately think that the siblings have the same issues. And sometimes (DustyKat) they do! I think it is always worth checking into - even for the mama's peace of mind. All that to say - so glad you have great news.

Welcome and SO GLAD your girl is doing well. :-)

Overall, we are having a good experience with Stelara. Claire is 11. She is also still on MTX.

ronroush7 What is your dose/interval now?

Sorry Ang. :-( Stupid disease. Sweet girl deserves so much better than that! J.

So her infusion was 9/22? that's only 9 days :( Sounds like you are headed back to steroids. :(

Measures inflammation. http://labtestsonline.org/understanding/analytes/crp/tab/test/

Had our first maintenance dose but fcp back up to 797. More labs in 3 weeks - doc says he feels like we should be seeing positive change with this dose or next.