Hi, I'm very sorry to hear about your little girl... Please be very careful when your Doctor wants to put her on steroids, my sister and I both got crohns at 11-12 also,, and ofcourse everyone with crohns have had it for a long time before we complain enoght to see a doctor and the long time to Diagnois for it...I never complained much because I was terrified of what it is, because we know that what we are feeling is very more serious than just a belly ache, I waited until 17 I went into the Navy, and I had my large intestine hemmorridge oneday while I was in the Navy hospital,[Don't care what any women says, NOTHING[no baby] is more painful than the intestines popping open and then being internally poisoned],lol.. that happened at 17 years old. because my intestines were swollen closed and when I was put back on clear diet the next morning, my life turned around....Now, since I had Crohns ,when my sister turned from 10 to 11 she was getting a lot of stomach pain and got worst, since her doctors knew about me in the hospital with crohns they tested her for crohns and found it...This was back in 1987,, The doctor didn't really now much about crohns and how to fight it,, except for striods, so since my sister was so young and catching the crohns early, they gave her steroid for a long time, and since my sister is 11-12 she is still GROWING the steroids ended up Shatering her spine in 8 different places she had to wear this costomised back brace for years until she stop growing and allow the spine to heal... Well,, now, she grew mispreportioned,, long back[ upper body with short legs, she really went through a lot... See if her treatment can not have steroids until shes 17-18 years..I have to tell you now,, this has really put my mother threw hell see her kids in so much pain and sickness,,,YOU, are going to have a lot of days of stress and sadness for you girl...We kids seen that and I keep everything pain sickness quiet for my mother don't have to worry...This is going to be a life time of sickness and pain , she too will feel like going crazy from so much pain + sick... I'm telling you now ,NOT to scare you ,but , to tell you that when it gets worst being surprised is not good with crohns I'm 48 now and battled with , the worst crohns that my doctors ever had...There may be a day where you daughter may begin to LOSE weight completely uncontrollably, only 1/4lb.-3/4lb. a DAY.. I was 17 and went from 152 to 89 and the doctors didn't have any clue why and what is going on,, I really thought I was going to die,,I could stand from no strength,,, if this happens,,IT because her INTESTINES are swollen closed and the body is fighting to maintian its balance, and surgery is the ONLY thing that will save anyone..I just want you to understand why,, if you ever see this going on....I'm so sorry if this scared you..I never got to now what was happening and THAT is Terrifing more.. Rodney
