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Crohn's Disease Forum

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  1. J

    The Dilemmas...

    UPDATE - The diarrhea stopped! You are all right - I was beginning to get worried that it was a possible fistula because I have had those in the past (a main reason I have an ileostomy in the first place). But it has been a little over 24 hours and I havn't gone to the bathroom (at least that...
  2. J

    The Dilemmas...

    Oh I forgot to add, there is hope that one day I can have a reversal surgery to connect my small intestine to my colon so I could be back to the way things were prior to surgery. It just hasn't happened yet.....
  3. J

    The Dilemmas...

    Thanks for the welcome/response! Don't think you're retarded haha it's a fair question to ask, trust me. So because I have an ileostomy I only have my digestive system really working from my mouth to the end of my ilium (small intestine, w.e word you want to use). For people that have permanent...
  4. J

    Surgery and remicade

    That's a hard one. Remicade kind of tricks the immune system. I don't think it would make a difference if you're on it and have surgery. It shouldn't mess up the healing process at all, the only thing it could do is increase your risk of infection (because of the tricking your immune system...
  5. J

    The Dilemmas...

    Okay so I've been having trouble lately with my ileostomy/crohns. Let's start by saying I've had one for over 3 years now. It is technically temporary, as I still have the majority of my colon, but I don't think I'm getting a reversal anytime soon (keep on reading for details :)). For approx...
  6. J

    Favourite band/music

    Some bands I listen to are R.E.M., Tallest Man on Earth, Wilco, Mogwai, Grizzly Bear, etc.etc. the list can go on i guess. However, if I had to choose a favourite, it would have to be Sam Roberts Band
  7. J

    .

    I'm on Entocort right now as well and I'm actually in the process of switching to pred because it's not doing anything for me. It is actually better to be on Entocort than prednisone (if it works ofcourse) because it is topical, which means it only acts directly on the infamed site rather than...
  8. J

    19 years old and 11 years since diagnosis! Lots to tell

    Wow! I can't believe how much I can relate to your story right now. I have had symptoms of crohn's disease since I was 4 and wasn't officially diagnosed until I was 8! I have a very similar experience starting with a crazy amount of supplements (iron, calcium, etc.) and then came the steroids...
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