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Hi there Guerrero. I now take it 90mins before a meal. Things have improved for me & I now only take 1x Questran sachet daily. I've also introduced some milled Flaxseed daily & this sems to help on the bloating front. I hope this helps you. Rgds Grant

Still here, doing well on Ustekinumab. So much so that I've rediscovered the delights of fruitcake. Keep well everyone. Best Wishes, Grant.

Tks Lynda, its a fine balancing act with this stuff. I tried taking it with meals-result was horrible painful bloating. I ow take it 30-60mins before meals. I use one & a half sachets a day. Rgds Grant

I give up!!

Anyone??

I've been using Questran for 10yrs now but even after all this time the best timing when to take Questran eludes me. Some say take with meals, just causes the most awful painful bloating for me. I've heard never ever take it on a empty stomach etc. Timing appears critical with this stuff so I...

Anyone?? Could really do with some advice/hear what others do? Help please Grant

Hi everyone. I've been on Questran for nearly 9 yrs now, but just lately the bloating has been terrible. I've seen on the net to take it with food. So I've been taking with lunch & dinner, its a slight improvement. But evenings are pretty bad still, even if I could go out I wouldn't because of...

This by Walter is exactly what I've experienced. I have another stricture now, I've managed it by low fibre diet. I'm absolutely loathe to have anymore surgery (x4 up to now). The disease just comes straight back. But & its a big but, if I start obstructing I know its almost inevitable that...

I'm using Gluten free bread as from next wednesday. If it reduces my bloating then I'll go the whole hog as in gluten free cake etc. Because of a stricture I eat very little fibre. Glutinous stuff I eat, white bread (4 slices a day), cake & extra special pancakes plus chocolate bars & biscuits...

Anyone else have Crohns Ulcers that crop up in the roof of the mouth or worse still in the throat? So painful, but worse the pain seems to congregate in my head as well, as if the inflammation spreads upwards. Absolute agony. I'm currently using paracetamol & codeine & even ibuprofen gel rubbed...

Pretty sure my father has it, he's always had a dodgy belly, but its mild. My Daughter has it -again very mild.

I'm now down to 8 weekly shots on Stelara. Its certainly helped. In fact I think its kept me away from the surgeons considering the stress I've been put through this year not allowing for the threat of Covid. I apologise for lack of input but this year has just been the worst capped by my poor...

I think this is due to bleach getting onto the plastic seat when the toilet is flushed, nothing to do with meds. There is a product like a sponge that you can rub these stains off with but for the life of me I cant remember what they're called sorry.

Good luck with your new G.I. Jnette. I don't know whats worse, the endless diarrohea or bouts of constipation. Because when I get that I get really anxious having had bowel obstructions in the past. When its over I thank god, when I have diarrohea I beg him to get it to go away. God cant win...

Guerrero, you've been through hell. 7 strictures all @ once!! I've never heard of that, you take care of yourself & please use this thread to let us know how you're getting on. Best Wishes Grant

I just had to look that up. :) I don't fancy that @ all tbh. But tks for the idea, I think it'll boil down to 2 things. 1 they'll bring the Stelara forwards to 8 weekly & 2 they'll probably go for a balloon dilatation. I'm willing to try the dialatation once but if it fails then maybe from there...

Before the last surgery Guerrero. I had a surgery in 2010 but the disease came back in 6 weeks, it was then decided to put me onto Humira. But there was a helluva delay (about 12 weeks before I got started & in that time another stricture had formed. That stricture was removed in 2012. My 1st...

Hi my little penguin. I'm seeing the specialist in 4 weeks, but if things continue to go downhill I will try & bring it forward. I used to be on Inflectra, that started out 8 weekly, ended up 4 weekly. Regards Grant

Tks for the reply Guerrero. 4 surgeries so far. The last in 2012. This one is being described as 3cm of acute inflammation. 3cm is just over a inch, how can 3cm absolutely floor me. I thought I'd seen & heard it all with this disease. Currently on Stelara 12 weekly. Best Wishes Grant