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Hi I wake him at 830 so his internal clock doesn't move to much (this happened at the beginning of this as I let him sleep in because I felt bad about him not sleeping at night. Yes he sees a therapist. He listens to music when not sleeping and will go downstairs when he can't sleep too long...

Hi My son is 12 and has had CD for 2 yrs. he is being weaned off prednisone because he developed osteopenia and had several broken bones in a short period of time. Although he's down to 5 mg fr 40 7 weeks ago he can't fall asleep until early morning. We've tried melatonin, good sleep hygiene...

Hi My son has had 3 Remicade tx. Each time they give him solumedrol and Benadryl prior to starting to prevent reactions. Is that unusual practice or are your kids getting this and still hving severe reactions? Sheryl

Hi my 12 yo son has CD, and takes 6mp and prednisone. He too has bad headaches hat effect school. Drs don't give me answers...let me know if you find out anything. Sheryl

Hi My son is 11.. He was to pitch in the playoffs for his. Baseball team last Saturday! It's all I thought about all last week. It took 3 days to work and he still isn't fine...but much better. Now he started 6 mp today and is throwing up!

Hi We had similar issue last week all day and all night..Doc increased pred fr 40-60mg daily temporarily. It helped and now he is going a lot less. Not the best but at least he feels a little better for a little time. Sheryl

hi You have me really curious now. My son is 11 with CD. He is on 60 mg pred since last week dueto uncontrollable diarrhea. He complains of dry heaves and chest pain. he is on Prilosec 20mg 2x/day. Sounds similar. He's miserable... Sheryl

Catherine Funny you should say that. He was on 40mg for a week and a half with no improvement and even with the 60 he still has some issues. He doesnt have increased hunger either? He face is puffy though..I thought it would work so fast. Sheryl

HI My son is 11 and after a yr of mostly declining with an occasional bright week, we started 50mg 6-mp and 40mg of prednisone to be tapered as the 6-mp kicks in in a few months this started about 2 weeks ago...well, it hasnt gone well.He started vomiting all meals, and had extreme nausia. The...

Daniel was dx at age 11, symptoms started ago 10...mysterious eye swelling through out his 9th yr...Sheryl

Based on those stats, youd think there would be more medications! So frustrating... Sheryl

My Daniel is 11. he started with symptoms when he was 10. Sheryl

HI My son, Daniel, hasnt met anyone his age with CD and I agree it would help him as he is so lost right now...He sent me a text fr the bathroom at school yesterday and I had to go get him because he couldnt stay out of the bathroom..It is the last thing I want to see on my phone and he was so...

HI there, Im Sheryl and my son Daniel was dx last summer after developing CD symptoms last winter when he was TEN! This does seem odd doesnt it? He is on ENtercort, pentazza, and prilosec and we are currently trying to convince him to try acupuncture as he hasnt been well this winter. Please...

Have any of you had experience with acupuncture in relieving symptoms etc? A friend who is studying this has encouraged me to try it for my 11yo with CD. Im curious? Sheryl

HI and thank you so much for listening. I have felt very isolated through this as most of the community sees Daniel as lively with a spark in his eye. That is how Daniel wants to be seen. I see differently at home, through the night etc. The Dr gave him something to minimize going to the...

Hes been on it since May. It was unclear as to why he had that last week, and by the time i had him tested by the pediatrician, it was no longer there.

My husband is taking him today, lets see what he says. I hear you. so frustrating!

HI Thank you for the response. I find myself doubting my son and I feel so badly about that as well. We began at CHOP in Philadelphia and found they were not will to try anything else and wanted him to go to Prednisone etc. My husband also has CD and took Prednisone for 30 yrs. Once he went to...

HI His meds have been changed some. He was being weaned off Entercort and then got more ill. so hes back on the higher dose. He was on bioxin, then changed to Cypro, now Flagyl. One constant has been prilosec as he has Hpylori, and pentaza. My GI thinks he should be ok without steroids, but...