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Thanks everyone!!! Update: last Tuesday he received his remicade. He seems to be doing a lot better. He also had blood work done. His b-12 was good(don't know what it was) his iron was 10. They were going to start iron infusions but decided to wait 2 weeks to see what he does with the iron...

Well we are getting the max dose on remicade as I type and the nurse said surgery is the next option. This sucks an I hate it!!!!! They did additional b-12 and iron studies on his blood work today so hopefully we will get some answers on that.

My husband received units 5&6 of blood last night. His hemeglobin was 6.9. All 6 units have been in less than 30 days. He started Taking some iron and I asked the nurse at the dr office if there was anything else we could do and she said we just have to get this disease under control. His crp is...

I'm going to on Tuesday. It's not all the time but also thinking he needs to go to a doc for thyroid and general labs done too. All this stuff is crazy. He told me this morning his pain was so bad last might he honestly did not think he was going to wake up today.

He's having trouble swallowing. Not every time but just a few min ago he had to spit out his water cause it would not go down at all. Could this be crohns related?

I think he needs surgery but he's not to thrilled about a bag. It's so confusing because I read that if you have indeterminate colitis there is a higher chance of j pouch failure and that the surgery they were talking about. This just plain stinks and with the holiday weekend I hope we don't end...

He's on remicade (3 treatments) , mesa? Enemas, 60 mg steroid, nexium, Allegra, Percocet and vanco. He's lost 73 pounds since February and 4 units of blood this month. Last time he was admitted the dr was saying something about a j pouch surgery but that if it's crohns then the disease can...

2 admissions and 15 days in the hospital and we came home and only got 3 good days. He's Feeling sick again and I don't know what we're doing wrong. His stools are increasing again and blood has returned too. We don't even have a for sure diagnosis. It's crohns or ulcerative colitis is all...

Yes remicade right now is every 8 weeks. He's done 5 mg/kg but they are thinking of going to 10mg/kg on his 4th infusion. Thank you so much for all your help.

His next infusion is not till June 22nd.

He's on 60 mg every morning. Is that a lot, normal or does he have room to go up. The other two times he was on it the weaned him very quickly. Hoping they do not do that again.

We have been through the ringer the past three months with three hospitalizations. My husband has had three doses of remicade and also does mesalamine enemas daily. He was not getting any better and had been on steroids for a short time. This hospitalization they started the steroids again and...

I have no idea what any of them are called but he said he would have a bag and then 3 months later go in and do something.

The pred I think is helping. He had a good day yesterday. Not so good this morning. He said he just feels blah. His stomach is upset and very painfully poos. this is crazy hard with the 7 kids at home. I think he's headed to surgery soon. I guess I should start reading up on it :(

Hello Manzyb!! 15 yrs ago he was diagnosed with ulcerative colitis and took meds for about 1 1/2 yrs. he hasn't been on them since nor been to a dr since. This yr end of jan. he started with blood in his stools and had a colonoscopy on feb 23. He has progressively gotten worse. The dr told...

So blood is done and the dr came to talk to him in detail. He told him he is very very sick and he is going to try to manage his care without surgery but if he does not start doing responding then we will have to start weighing our options. He talked about starting another med along with...

Starting him on steroids and two units of blood. He got two units 8 days ago too

So he's on fluids, vanco, prilosec, allegra, zofran and Percocet. He was running fever so he had blood cultures done,CBC,crp,cmp,sed rate and stool (checking for cdiff). Oh and type and screen and have two units of blood waiting for the call if he needs it. I thought they were going to start...

So far they have said he needs hydration, probably blood again( he got 2 units last weekend) going to look into Iv steroids. the PA is who saw him and now he is discussing it all with the dr now. They said ct and X-ray looked ok. He has a lot of inflammation.

Husband is being admitted for the 3rd time. We just got out last Tuesday and I called the nurse today and dr wants him readmitted. He's on remicade, enemas, vanco, Prilosec, and Percocet. What do I need to ask and I'm so lost. We're meeting at the dr first then doing a direct admit to avoid...