Hello and WOW! I wish I would've known about this forum sooner.
I was diagnosed in 2001. It took 5 or so years of being sick.
I started out on prednisone and pentasa and flagyl but none of that lasted very long cause I ended up in the psych ward with some drug induced psychosis. That was the summer of 2001.
After that it was Remicade and Imuran until 2006 when I got sick again. This time I spent a long time in the hospital with NG tube and not eating for 5 days or so.
Then in yearly 2007 I had small bowel resection. Remicade had stopped working. Surgery helped a lot. Then I was just on vitamin B-12 shots and azathioprine. And now I'm not on any Crohn's meds. But I do take a lot of vitamins and psyllium husk flakes. I found it helps better than Welcol and that powder stuff - colestramine, I think.
And right now I don't have any symptoms of Crohn's. I go to the bathroom a lot but sometimes its an actual poop and not just runny diarrhea. I think it's due to have a lot of small bowel removed cause I know what a flair feels like and I haven't had one in a long time.
Also I used to have distracting joint pain - especially in my knees. But it's cleared up after stopping the azathioprine. It took a few weeks though.
For the past few months I've been collecting my medical records and I've made a data visualization of experience. But the blog isn't quite ready for release yet. I'll post back and try and provide some direction for someone who wants to make a visualization of their health history. Everybody is so different though it'll be next to impossible to create a generic visualization templet.
:ybiggrin:
Anyhow, I really wish I would've found this forum sooner! It's really good.
I was diagnosed in 2001. It took 5 or so years of being sick.
I started out on prednisone and pentasa and flagyl but none of that lasted very long cause I ended up in the psych ward with some drug induced psychosis. That was the summer of 2001.
After that it was Remicade and Imuran until 2006 when I got sick again. This time I spent a long time in the hospital with NG tube and not eating for 5 days or so.
Then in yearly 2007 I had small bowel resection. Remicade had stopped working. Surgery helped a lot. Then I was just on vitamin B-12 shots and azathioprine. And now I'm not on any Crohn's meds. But I do take a lot of vitamins and psyllium husk flakes. I found it helps better than Welcol and that powder stuff - colestramine, I think.
And right now I don't have any symptoms of Crohn's. I go to the bathroom a lot but sometimes its an actual poop and not just runny diarrhea. I think it's due to have a lot of small bowel removed cause I know what a flair feels like and I haven't had one in a long time.
Also I used to have distracting joint pain - especially in my knees. But it's cleared up after stopping the azathioprine. It took a few weeks though.
For the past few months I've been collecting my medical records and I've made a data visualization of experience. But the blog isn't quite ready for release yet. I'll post back and try and provide some direction for someone who wants to make a visualization of their health history. Everybody is so different though it'll be next to impossible to create a generic visualization templet.
:ybiggrin:
Anyhow, I really wish I would've found this forum sooner! It's really good.
