15 year old girl on modulen

[Charlotteee]

Hey everyone, I am a 15 year old girl and was diagnosed with crohn's at the end of March. Last saturday I started modulen IBD, it is like formula milk powder, and is very effective. My symptoms of crohn's were diarrhoea, bad abdominal pains and quite a lot of weight loss. The modulen stopped the pain from day 1, but makes the diarrhoea more frequent, has anyone else found that? Also I flavour it with nesquik chocolate milk, many people find it repulsive but considering it is the only thing I can eat it's really starting to grow on me!

I am getting depressed a lot though and crying, the things mainly is that 'it's so unfair' , 'why me?' 'No one else has to do this' just mainly hung about not eating for 6 weeks. I am however allowed 'clear' hard boiled sweets, mints and chewing gum. Last year I had major spinal surgery for scoliosis and now this! But reading other peoples stories I am quite lucky, I think I have a fairly mild case of crohn's, I am not on any steroids or drugs, except omeprozol which is an antiacid or something I think.

So far the only hospital treatment for crohn's was when I had a colonoscopy, endoscopy and gastroenoscopy (I am not sure how it is pronounced) that was okaaay, laxatives and not eating was pretty miserable though! I was only meant to be in for one night but they started my treatment and needed to make sure I caught it on so I was in for a total of 5 nights. Some people find modulen disgusting and have to go for other treatment but modulen is the most effective and best for the body so I had already decided I would stick with it. I flavour it with nesquik chocolate milk flavouring and I actually really like it! All of my friends and family who have tried it find it disgusting though..

Sometimes I feel just generally so angry at everyone because it's alright for them, they can eat whatever and whenever they want! Then I feel bad because everyone has to eat.. just I feel like I want to talk to someone that has been through what I have, so this site seems pretty good. If you have any tips on dealing with the cravings or just help please comment

 

[Crohn's 35]

Hi Charlotte, welcome to the forum! Yes, we know about the 'why me' and unfair anger moments. It really doesnt help your crohns so..we have to pull up our big girl pants and try to go on with our lives and be grateful for what we do have. This disease is a hard pill to swallow and it is scary but once you find what works for you, and resting, you will be surprised how you manage. If you are having lots of d, make sure you take calcium and Vitamin D3. Ask your doctor about Questran because Imodium is not to be taken long term. How long do you have to stay on Modulen? I have never had it but I hear it tastes not so great. Brushing your teeth helps cravings, not much help I know. Keep us posted how you are doing. Hugs, and glad you are here!!!

 

[xJillx]

Hi Charlotteee and welcome! I often say the same things: Why me? or It's not fair. I think that is only normal to question and be angry. Feel free to visit the Support section of the forum and let it all out! We understand how you feel!

I hope sticking with the modulen diet pays off and gets you feeling better. Have your doctors suggested any daily maintenance medication? A maintenance drug is important to get/keep you well. Good luck and I look forward to seeing you around the forum!

 

[Charlotteee]

Aww thank you I am on modulen for 6-8weeks, going to see my gastroentologist (?) in a week or so and I'm hoping then he can give me a 'date' as to when I start gradually building up food again- something to count down. Modulen is like powder milk and on its own very creamy and weird tasting, I add nesquik chocolate milk flavouring and actually quite like the taste of it, which makes having it easier thankfully! I am learning to cope but I know it will take some getting used to and I have to be patient.

 

[Charlotteee]

Hi Charlotteee and welcome! I often say the same things: Why me? or It's not fair. I think that is only normal to question and be angry. Feel free to visit the Support section of the forum and let it all out! We understand how you feel!

I hope sticking with the modulen diet pays off and gets you feeling better. Have your doctors suggested any daily maintenance medication? A maintenance drug is important to get/keep you well. Good luck and I look forward to seeing you around the forum!

They have not suggested any medication except for omeprozol which is to help my stomach I think? I have 2 ulcers there and inflammation in my gut so I think the modulen sorts out the gut. I don't think they will prescribe me any medication until the modulen course is over.

 

[xJillx]

Well, be sure to discuss a maintenance drug. You'll want to keep that inflammation from coming back after all of your hard work!