- Joined
- Jan 22, 2009
- Messages
- 46
Well hey yall.... Ive been around here lurking for quite along time, and fig i would join and start posting cause of the hotties around here lol...... But no seriously, ive felt i should start and help out if at all possible and maybe get some advise as well!
Well to start my Name is DG and ive had Crohns Colitis for 16 years+! I enjoy life, try to help others by speaking at Help Groups and Colleges, go quading, build motors, dance/teach salsa(on 1), play around on the comp(used to be a network tech), cook and many many other things!
My drs tend to think i was born with Crohns Colitis, due to digestive issues as a baby, so i was put on Goats milk(Yes straight from the Goat) till like 5y/o i think. After that, went to reg ol store bought milk and never really had any issues up untill 10y/o.
After that is when this story would get very very very long so ill keep it short and if you want details your more then welcome to ask!
Was diagnosed with Sprue at 10 by Endoscope, which was a misdiagnoses till 11 y/o which was by a Colonoscapy, and was givin a choice to go to WA or UT to see a Peditrican GI due to not having one here in Idaho. So i chose Salt Lake City UT cause we have family there and would be much easier on my parents. I was 5 2 and 53pds(yes pretty much dead and have the picture to prove it)! Flew out there there day after finding out and ended up staying in childerns hospital there(Primarys) for about 3months or so! Had TPN line put in and ran tons and tons tests, woke up every other morn to have blood work done and many endos and colonoscapys, not to mention the reg ol routine things every couple hrs.... But in the end i didnt care really, i was alive, a kid, a boy who understood it all had to be done to help me be healthy or atleast some what healthy....
Finally left, and ended up having to go back every 2 weeks - a month for check ups and some times i ended up calling Primarys my home again for a month or so to stay healthy, or in my mind, to stay alive at the time!
Time came when i turned 18 and could no longer go there and chose a local GI here! Since then ive only been in the hospital once for a week after dropping 30pds in a month due to first having Phuemonia, Cracking a Rib, Tearing a Back muscle and my Crohns Colitis kicking in....... Tho i shoulda went in sooner then i did, but eh owell.
Have had a recent flare that has dropped me 25pds so far, and well, there is now talk of surg., due to have way to much built up scare tissue...... Right now im tryin to get into a Rheumatologist to see if i have Lupus or not and hopfully talk to him and my Dr to putting me back on Remicaide(which i have been on and off since 1996)
At the moment im taking Endocort, Asacol, Imuran, Prilosec and Vicodin as needed - GoL Probiotics, Digestive Enzymes, Collidal Silver, Fish Oil, and Multi Vit!
Ive been through alot i know, cause everyone tells me even the nurses and drs considering i have 6 or 7 of full folders of my history in my Drs office.
So i live day to day, dont take nothing for granted, and enjoy everything as much as i possible!
I hope you are all healthy and enjoying your day!
Well to start my Name is DG and ive had Crohns Colitis for 16 years+! I enjoy life, try to help others by speaking at Help Groups and Colleges, go quading, build motors, dance/teach salsa(on 1), play around on the comp(used to be a network tech), cook and many many other things!
My drs tend to think i was born with Crohns Colitis, due to digestive issues as a baby, so i was put on Goats milk(Yes straight from the Goat) till like 5y/o i think. After that, went to reg ol store bought milk and never really had any issues up untill 10y/o.
After that is when this story would get very very very long so ill keep it short and if you want details your more then welcome to ask!
Was diagnosed with Sprue at 10 by Endoscope, which was a misdiagnoses till 11 y/o which was by a Colonoscapy, and was givin a choice to go to WA or UT to see a Peditrican GI due to not having one here in Idaho. So i chose Salt Lake City UT cause we have family there and would be much easier on my parents. I was 5 2 and 53pds(yes pretty much dead and have the picture to prove it)! Flew out there there day after finding out and ended up staying in childerns hospital there(Primarys) for about 3months or so! Had TPN line put in and ran tons and tons tests, woke up every other morn to have blood work done and many endos and colonoscapys, not to mention the reg ol routine things every couple hrs.... But in the end i didnt care really, i was alive, a kid, a boy who understood it all had to be done to help me be healthy or atleast some what healthy....
Finally left, and ended up having to go back every 2 weeks - a month for check ups and some times i ended up calling Primarys my home again for a month or so to stay healthy, or in my mind, to stay alive at the time!
Time came when i turned 18 and could no longer go there and chose a local GI here! Since then ive only been in the hospital once for a week after dropping 30pds in a month due to first having Phuemonia, Cracking a Rib, Tearing a Back muscle and my Crohns Colitis kicking in....... Tho i shoulda went in sooner then i did, but eh owell.
Have had a recent flare that has dropped me 25pds so far, and well, there is now talk of surg., due to have way to much built up scare tissue...... Right now im tryin to get into a Rheumatologist to see if i have Lupus or not and hopfully talk to him and my Dr to putting me back on Remicaide(which i have been on and off since 1996)
At the moment im taking Endocort, Asacol, Imuran, Prilosec and Vicodin as needed - GoL Probiotics, Digestive Enzymes, Collidal Silver, Fish Oil, and Multi Vit!
Ive been through alot i know, cause everyone tells me even the nurses and drs considering i have 6 or 7 of full folders of my history in my Drs office.
So i live day to day, dont take nothing for granted, and enjoy everything as much as i possible!
I hope you are all healthy and enjoying your day!
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