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Crohn's Disease Forum

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Joined
Jul 18, 2012
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Hello all, here is my problem I am on humira have been for about three months, I was on predisone but wasn't working ,oh I was diagnosed with crohns . Well since I started the humira I feel like it isn't working, I have had a colonoscopy ,ct scan ,the camera pill ,blood work I have it all! So the colonoscopy showed I had many ulcers where I had my resection, so active disease , when I had the camera the ulcers were going up through my small bowel, blood work is coming back normal, when I had the ct scan after being on the humira for about 2 months didn't show any inflamation , but he said they were concerned about seeing narrowing in my colon...which my doc says he is not concerned about it cause he was just in there a couple months ago :ywow: I am so tired all the time ,I've have had diahrea on and off for a couple months, this past week I have had it , yesterday I was on the toilet 7 times today I have been 4 times already....I keep having nausea real bad and my back is killing me! No appetite either I'm scared I'm going to start loosing weight again :( when I talk to my doc he says maybe its not your crohns ,maybe it's something else but he fails to give me any ideas ,I'm so frustrated and so tired, sorry so long
 
Hello
Sorry you are going through a horrible time. I think you need to go back and see your dr and tell them something needs to be done or go and see another GI. It's not right that they are dismissing the problems you are having. How often are you havin humira? Could you go up to weekly doses to see if that could have more control for you?
Hope you get the answers you need soon x
 
I am on humira 1 every 2 weeks, I recently just had to let my job go because of this I called my doc and I am waiting for him to call me back....
Ty for your reply :)
 

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