Thank You! He’s doing well. Aside from the 15 min potty trips, you’d never know anything was up. Averaging 2 times a day, still some blood, but prob 80/20 brown to blood. Hasn’t complained about his leg. Checkup and Remicade at CHOP on Weds. He really is doing well, wants to wrestle me constantly. He’s also got a taste for carnation shakes, so that I am very thankful for.It's been several days, thought I would check in. How is it going?
I'm a moderator - I'm honestly not sure if we're allowed to post pictures of bloody stool. I'll try and find out. If not, you can post pictures in a private message to any other member - perhaps @crohnsinct can help you assess since her daughter tends to bleed.I would assume we’re not allowed to post pictures, if we can I will.
This made me laugh! I think that is the best response I have heard a child have to rectal therapy. You have an amazingly resilient kiddo!Yes we are using proctofoam and honestly it’s one of the highlights of all of this. We uncontrollably laugh every time we do it! Only once a night.
Your son's colon can certainly heal and get "pink and pretty" as @my little penguin calls it . My daughter was not diagnosed with severe Crohn's - she was diagnosed with mild Crohn's (and at some point along the way they started calling it "mild to moderate," whatever that means), but she did have small ulcers throughout her colon and inflammation in her TI. After 8 months of Remicade and MTX, her next scope showed that her colon looked "beautiful" (that is really what the doc said!) and all biopsies were perfectly normal in her colon. Her TI had very mild inflammation seen on biopsies but visually looked pretty good.Ya, I guess I was asking is it possible to have a milder form of IBD where you wouldnt need biologics. Or is it more, once the cat is out of the bag, you cant really return to how it was handled before the big flare happens. I guess the goal is to stay on top of it to avoid further damage.
Didn't O once have a calprotectin that was 16 or something like that? I vaguely remember her sister accusing her of sending in someone else's poop !One of my daughters says calpro under 200 is a myth.
So glad your son is doing better!! That is wonderful news - that's a very normal calprotectin!!On 2/13 his calpro was 1,120, latest test from 4/10 he was at 62
Goal is to make it to Weds 4/21 for his next Remicade infusion and checkup.