Hi all! I'm a mum from the U.K with a Daughter who has had rectal bleeding/tummy pains/bloating/blood in vomit on and off since 18 months old, she is now 7.
Her problems started off at 18 months old when she filled a Nappy with blood and I had to take her to A & E. They examined her and couldn't find any tears on her bottom and put it down to a one off episode.
Fast forward 3 years and I started to notice she wasn't gaining any weight, I kept going to the Doctors.
Then the Rectal bleeding started up again, and she's been bleeding on and off for the last 2 years.
She's had top and bottom scopes that were clear and her Calprotection has only been high once (although not tested since July last year, handed in a new sample yesterday)
She suffers from inflamation in her Knee Joints and goes to Physio for that.
A month ago she had a video capsule endoscopy at Great Ormond Street Hospital, had the results last week and they've found the third section of her small bowel is damaged.
On the report it says she has angiodysplastic lesions of significance and Erythematous Lesions covering Lymphoid Nodules.
She went for a Barium swallow yesterday which was clear but she also had an abdominal Ultrasound that showed inflamation and thickening of the walls in her Small bowel, also enlarged Lymph nodes.
I'm now being told it could possibly be inflammatory bowel disease so she needs to have an MRI.
Has anyone else had the same symptoms?
I'm pleased she is nearly at Diagnosis of her problem but also nervous.
Just to add she has a genetic link to Crohns , as her Grandfather had it.
I've been looking at Dr google to try and find reasons for the lesions other than IBD but not having much luck, she's had symptoms for so long.. I really don't know what else it could be.
:sign0085:
Her problems started off at 18 months old when she filled a Nappy with blood and I had to take her to A & E. They examined her and couldn't find any tears on her bottom and put it down to a one off episode.
Fast forward 3 years and I started to notice she wasn't gaining any weight, I kept going to the Doctors.
Then the Rectal bleeding started up again, and she's been bleeding on and off for the last 2 years.
She's had top and bottom scopes that were clear and her Calprotection has only been high once (although not tested since July last year, handed in a new sample yesterday)
She suffers from inflamation in her Knee Joints and goes to Physio for that.
A month ago she had a video capsule endoscopy at Great Ormond Street Hospital, had the results last week and they've found the third section of her small bowel is damaged.
On the report it says she has angiodysplastic lesions of significance and Erythematous Lesions covering Lymphoid Nodules.
She went for a Barium swallow yesterday which was clear but she also had an abdominal Ultrasound that showed inflamation and thickening of the walls in her Small bowel, also enlarged Lymph nodes.
I'm now being told it could possibly be inflammatory bowel disease so she needs to have an MRI.
Has anyone else had the same symptoms?
I'm pleased she is nearly at Diagnosis of her problem but also nervous.
Just to add she has a genetic link to Crohns , as her Grandfather had it.
I've been looking at Dr google to try and find reasons for the lesions other than IBD but not having much luck, she's had symptoms for so long.. I really don't know what else it could be.
:sign0085:
