A slightly different chron's story

[the0ry]

About a year ago I had an appendicitemy and took longer to recover than the average person, then a couple of months ago I started having flare ups and they got worse and worse as the weeks passed, I was rushed up to hospital several times and the pain was just unbearable. I had a colonoscopy and a MRI scan and got diagnosed with chron's disease. Then a few weeks when the results of the MRI and colonoscopy they said they don't think it's chrons, they think it's a result of the appendix operation thats lead to the flareups. This made me really happy because I don't look like your average chron's sufferer in terms of weight I mean I eat a lot and am not skinny ect. So they said I needed to have a ileum resection or something (where they remove part of your bowel/colon) so I had the surgery and after a week I thought it was allover, they said they would have the results in a month. I honestly felt as if I didn't have chron's again but then they called me in and it turns out after all that I still have chron's and he said it was survere.
And the only thing that seems to help is cannabis.

 

[Dexky]

Welcome theOry!! Are you taking any meds besides mj? I'm sure it can make you feel better but I don't think it will help prevent future flares. How are you doing now?

 

[Waytooskinny]

I'm soo sorry about your current situation. I would also like to know if they have put you on any meds? I understand about the marijuana helping, but it doesn't fix the problems. I also use it, in addition to, my normal medications. I worry though that the doctors you have seen, seem to jump from one theory to another. If I were you I would consider going to a another GI for a second opinion. Good luck with everything and remember that you will be your biggest advocate. So don't stop with questions and telling them when something doesn't work.

 

[the0ry]

When I was first first diagnosed with chron's I was on budesonide, then they stopped that and put me on prednisolone then after the surgery when I was officially diagnosed I've been on pentasa.