A surgery surprise, the good kind!

Crohn's Disease Forum

Help Support Crohn's Disease Forum:

Joined
Apr 18, 2011
Messages
101
We just got home today from the hospital. Garrison's surgery was on the 1st and today was my first chance to get to a computer, so I apologize for the delay. Surgery was surprising, in a good way. Please induldge me in telling my mini heart attack story.

Garrison had been in surgery for an hour, the nurse called, said all was going well and they had about another hour. So I was told to go get something to eat. (That's right, I left the floor:shifty:) I had been downstairs long enough to order and my husband calls, "They want us in a meeting room, right now." Me: "Who said that?" dh "Some tall doctor, not ours." Well, you can imagine, I am white as a sheet, start trucking it down the hall, my mom is behind me trying to keep up saying "it's good news, I'm sure." We get up to the 2nd floor and the surgeon walks in the room and starts making small talk, WHAT! I look at him and said, "Is this good news, or bad!" He looks at me like I am crazy and said, "Oh, great news, we didn't have to remove any bowel!" :ywow: and then our surgeon walked in all smiles. Sure wish they would have led with that. LOL

Here's the big news, the surgeon did not see any evidence of Crohn's! It seems Garrison was in such pain because the adhensions from his surgery as an infant had stuck to the bowel wall and as he grew, his intestines were being stretched and twisted. One portion went diagonal across his gut and turned 180 degrees. He compared the matting in the TI area to a rat's nest. So he had to scrape the intestines from the walls as well as itself and straighten it all out. He thinks the bleeding uclers are the result of a build up of bile salts not being able to pass through. So, he wants to start Garrson on questrine as soon as he starts eating better. I am trying not to get my hopes up, still concerned with his anemia and lack of growth, but no Crohn's, wow, what a surprise ending.

Take care,

Vicky
 
OMG, how incredible!!! I'm so very, very happy for you!!!!! :D :medal1: :D

I hope Garrison is recovering well from his surgery!
 
Oh Vicky, this is just the best news!!!
happydance.gif


I hope his recovery is uneventful and speedy and the word Crohn's is never uttered again! :ybiggrin:

:mademyday:
Dusty. xxx
 
What wonderful, amazing news!! I hope you recovered from your heart attack and are enjoying a celebratory evening right now...YAY!!
 
Advice on the questrine - I was hospitalized for three days with severe diarrhea from campylobacter, and they kept giving me that awful stuff trying to give my stools any sort of substance (didn't work, btw lol).. if you mix it with apple juice, it pretty much doesn't have a taste at all :ysmile:

Still has a bit of an odd texture, but the taste is MUCH more palatable!
 
We were so excited when we got home. Things were going great until Wed. night when one of the boys got the stomach bug. I was up with him from 2:30 until 5:30 in the morning. And then around noon, Garrison started throwing up! He threw up quite a bit the day after his surgery, and with the NG tube in, it was not pleasant. So here it is a week later, and he is throwing up again. We did get phenergan (a compound that you apply to your wrist) and that worked, but he won't eat. Thankfully he is drinking water, but that is about it.

How long till he is ready to eat again? Mommy wants to see some poop! LOL
 
Ach!! The poor kid! That must be awful for him with the new surgery wounds!! I hope it is/was a short-lived bug!!
 
Advice on the questrine - I was hospitalized for three days with severe diarrhea from campylobacter, and they kept giving me that awful stuff trying to give my stools any sort of substance (didn't work, btw lol).. if you mix it with apple juice, it pretty much doesn't have a taste at all :ysmile:

Still has a bit of an odd texture, but the taste is MUCH more palatable!

Thanks for the suggestion. I was hoping he would start eating so we can give him the medicine, but he is still refusing to eat. Ugh!
 
When you do start Questran be sure that you don't him any other medication/supplements, if he is on any, within 2 hours before or 4 hours after taking the Questran as it can affect their absorption. If he can't tolerate Questran, as my daughter didn't, then natural psyllium husks can be used as an alternative. There are exclusion times when using that as well but are reduced down to 1 hour before and two hours after.

Good luck and I hope he is feeling better soon!

Dusty. xxx
 
Back
Top