Afraid for my future

Crohn's Disease Forum

Help Support Crohn's Disease Forum:

Joined
Nov 12, 2014
Messages
6
I haven't been as active in my life as I wish I could be. About a year and a half ago I was strucken down with illness. It started off with just general nausea and abdominal cramps but eventually I was being driven home from work(multiple times) by ambulance. I was vomiting blood, excreting blood, was always either constipated or having diarrhea. Around January of last year I had to stop work altogether(laboring at a coal mine in northern canada). Now somedays are good days and some days are bad days but ultimately my health deteriorated even more. The doctors were clueless as to what was wrong with me. So I took matters into my own hands and started practicing Qigong. For awhile the combination of Qigong, Nexium, Marijuana, a well-Balanced diet and a clean environment was working but every so often I would get a relapse in symptoms. Basically my gastro dr. thought I just had a severe form of IBS. After things got worse around September 2014, I decided to move down south to New Westminster BC. My old family doctor from when I was a child lives in Richmond and he also knows quite a bit about my father's health condition(He has Crohn's Disease). Then in Novemeber, on Rememberance Day I had another severe relapse in symptoms after going on a hike with some friends. I had horrible excruciating "stabbing" pains in my lower right abdomen beside my right hip bone and when I passed stool only blood was coming out. After a night in the hospital, my GP and my specialist decided to put me on Prednisone. Prednisone was dual-sided blade, it helped stop the inflammation and bleeding but it caused intense mood swings as well as insomnia. After 6 weeks of that treatment I was better. I was training everyday again(Buddhist Qigong) and I was even making it to the gym again every so often. For 4 monthes I lived with the pain. Everyday I go through pain, but its bearable at least. Its just a burning/gnawing feeling in my gut. Progressively as time went, again it started getting worse. After Qigong training at the academy, I ate some food that didn't sit well but I went about my day as usual. After watching some movies with my girlfriend I went home and all of the sudden I got the sharp pains again. First came the stabbing, then came the bleeding and it went down hill from there. I finally realized that I wasn't gonna just tough through it and I called the ambulance. I spent hours in emerg screaming in pain, they gave me 10 shots of morphine and it barely even edged off my pain, the nurses then switched to hydromorphone and it only barely helped ease the pain. As the days were passing, I couldnt keep any food down at all, couldn't sleep at all and I was getting skin rashes. The doctors did multiple tests on me in the past year all showing normal inflammatory markers and normal results(except for a ct scan which showed thickening of my terminal ileum). Around day 2 I went for an ultrasound which showed an increased thickening of my ileum and a colonoscopy which only came up with hemmerhoids. Then on day 4 my Mom came and brought my soup but I ended up puking it all up, then I was projectile vomiting. Then all of the sudden I felt numbness in my hands, then my legs, then my whole body. I lost control of my body, fell to the floor and began seizing up. Everything went black after that, I could hear noises but they were so far away. Eventually I came to and was surrounded by doctors and nurses. Apparently my heart almost stopped beating but they managed to bring me back to consciousness. Day 5 I was feeling completely demoralized, old people were dying all around me and I was afraid. Then in the evening time the numbness came again, I managed to hold it off for half an hr(by focusing on my girlfriend). Eventually it took over and I was shaking again. I was in a black empty void at this point, followed by an intense burning light. I came to my senses once again surrounded by nurses and doctors with an oxygen mask on my face. After that they put me on Nabilone(which has helped only slightly with nausea) and then took me off all pain meds and I suffered the most intense pain of my life. I used to powerlift at amateur level(drug free), used to do hard martial arts and i've even broken a few bones but none of that even comes close to that pain I felt in the days following. Finally last saturday I was released as an outpatient. I'm still waiting on test results but as is, the Neurologist thinks what happened to me is a complete anomaly(still trying to make out the EEGS), my gastro specialist doesn't know what it is and the team of doctor's that are working on me are clueless as to what is. The pain is still here but right now at least i'm still alive. I'm just afraid for the future is all. All I want to do with my life is something constructive, something that will help people. Make music(I sing and play guitar) and pursue engineering. I haven't been able to do much of anything lately, i've been in extreme lethargy. Worst of all though i'm afraid for my future. :(
 
It sounds like you have had a hugely frightening experience and I can't imagine what that must have been like for you. I hope the doctors can find out what is causing all this and make sure you get the correct treatment.

Its good if you can focus on something that you enjoy. I'm a huge reader and when I feel bad I find it sometimes helpful to get my head in a book that can take me away from my thoughts for a while. I hope things have a good outcome for you xxx
 
I can't express how I felt while reading ur story, I felt like my chest is squeezed.. but in the same time I admire ur toughness, its rare to see fighters like u these days, so keep up the good optimism and go through ur journey soldier.

If it helps I have crohn's disease since year of 2000, and last year of 2014 I was diagnosed with 2nd stage Lymphoma Cancer, some times life is a mystery .. but I like to consider my self as a fighter and just neglect the pain as much as possible .. not to forget to smile thou ^_^

My name is Mohammed from Saudi Arabia

Best Luck to all who is suffering by any kind of pain in this world .
 
I just saw my specialist and all the results are in. He diagnosed me with FAPS(Functional Abdominal Pain Syndrome) Negative on everything else stds,parasites,bacterial and crohn's disease). Apparently not a whole lot is known about it and he's hoping to find a treatment that works and that I'm not allergic to... Thanks for the support I truly appreciate it ☺
 
Back
Top