I
InSovietRussiaCrohnsHasU
Guest
Hello everyone! First off thanks for this forum! I have been reading it the last few days and found it a very helpful place! lots of good info here...learned more here then from my Doctors sadly! I am 21 and have a beautiful 3 month old daughter and an amazing girlfriend that has been very supportive through all this. 
so my story....Well, for the last 2 years I have had terrible stomach and lower back pain with diarrhea and going to often. At first I thought nothing of it and just ignored it. I would just take 800mg of ibuprofen every 4-6 hours and keep going. Well about 5 months ago it started getting to hard. I would wake up in the night from lower back pain and stomach pain, I would go 8 times a day weeks straight then not at all. I went to the clinic and explained everything. I did some research and actually thought I had crohns. I told them at the clinic that and they said it was possible but would do some test to rule out other things first. It was kind of frustrating to deal with. I told some of my family I thought I had crohns and they would say, "I think if it was that it would be much more painful..." :0 so they ran test and still had no idea. seemed like they were ready to just call it ibs and move along. Then I got a really cool doctor there that actually listen to me. He said ibs was possible but he wanted to do a colonoscopy to make sure, because crohns and UC were possible as well. He said he thought it was UC but wanted to be sure. SO I had an appt. set for Nov. 27 finally. Thanksgiving morning I woke up at 5 in the WORST pain I have ever felt. I rushed to the bathroom and went to find it was red colored! not just blood around it, but mixed with my stool. When i wiped it was just blood. (Im not being very modest...I figure eh we all have crohns, we've all been through this type of stuff am I right? lol) I was freaked out! I was trying to talk my self into just going back to sleep, taking some ibuprofen like usal and waiting the two days instead of going to the ER, but in the 10min I was thinking I went twice more, this time tho it was just blood, and lots. So I told the GF and I went. After the long wait and some amazing pain killers, I had a colonoscopy done. On my way back up to my room the dr comes and tells me I will be having an emergency surgery because they found a large growth in my intestines. :/ I was to drugged to even understand so I just said , eh ok sounds good. They ended up taking out a softball size growth, 2 ft. of intestine and my appendix. This time when I woke up I had the pictures next to my bed of the growth and I was so nervous! They were talking about possible cancer! the Doctor came in and explained everything to my family while I was past out and said he did not think it was cancer but crohns. The labs took 5 days to get and to relieve some tension. Not cancer...but crohns..:/ so, I am very new to crohns and looks like I found a good place to learn about my new disease! Looks like no more of my favorite foods for the most part, but if it keeps me from going 24/7 thats fine. So some questions if you guys dont mind... I am on asacol atm, anyone else take this? I am noticing that I sometimes have the pills in my stool, have an appt on tuesday with GI doctor to talk about this, but anyone else have this issue? Also...I still have diarrhea! Does it ever go away? Some days are worse then others, but will I ever have normal stool again? Is this a sign that the meds are not working as they should for me? Also since I will be asking about other possible medications, what are you guys on/tried in the past that you like and works well? Again, thanks for the all the advice and help here!
so my story....Well, for the last 2 years I have had terrible stomach and lower back pain with diarrhea and going to often. At first I thought nothing of it and just ignored it. I would just take 800mg of ibuprofen every 4-6 hours and keep going. Well about 5 months ago it started getting to hard. I would wake up in the night from lower back pain and stomach pain, I would go 8 times a day weeks straight then not at all. I went to the clinic and explained everything. I did some research and actually thought I had crohns. I told them at the clinic that and they said it was possible but would do some test to rule out other things first. It was kind of frustrating to deal with. I told some of my family I thought I had crohns and they would say, "I think if it was that it would be much more painful..." :0 so they ran test and still had no idea. seemed like they were ready to just call it ibs and move along. Then I got a really cool doctor there that actually listen to me. He said ibs was possible but he wanted to do a colonoscopy to make sure, because crohns and UC were possible as well. He said he thought it was UC but wanted to be sure. SO I had an appt. set for Nov. 27 finally. Thanksgiving morning I woke up at 5 in the WORST pain I have ever felt. I rushed to the bathroom and went to find it was red colored! not just blood around it, but mixed with my stool. When i wiped it was just blood. (Im not being very modest...I figure eh we all have crohns, we've all been through this type of stuff am I right? lol) I was freaked out! I was trying to talk my self into just going back to sleep, taking some ibuprofen like usal and waiting the two days instead of going to the ER, but in the 10min I was thinking I went twice more, this time tho it was just blood, and lots. So I told the GF and I went. After the long wait and some amazing pain killers, I had a colonoscopy done. On my way back up to my room the dr comes and tells me I will be having an emergency surgery because they found a large growth in my intestines. :/ I was to drugged to even understand so I just said , eh ok sounds good. They ended up taking out a softball size growth, 2 ft. of intestine and my appendix. This time when I woke up I had the pictures next to my bed of the growth and I was so nervous! They were talking about possible cancer! the Doctor came in and explained everything to my family while I was past out and said he did not think it was cancer but crohns. The labs took 5 days to get and to relieve some tension. Not cancer...but crohns..:/ so, I am very new to crohns and looks like I found a good place to learn about my new disease! Looks like no more of my favorite foods for the most part, but if it keeps me from going 24/7 thats fine. So some questions if you guys dont mind... I am on asacol atm, anyone else take this? I am noticing that I sometimes have the pills in my stool, have an appt on tuesday with GI doctor to talk about this, but anyone else have this issue? Also...I still have diarrhea! Does it ever go away? Some days are worse then others, but will I ever have normal stool again? Is this a sign that the meds are not working as they should for me? Also since I will be asking about other possible medications, what are you guys on/tried in the past that you like and works well? Again, thanks for the all the advice and help here!
