Anyone experience all the EIMs?

[ArinMelissa]

It's me again... asking for advice on EIMs.
Mine seem to be progressing along and sometimes I'm doubtful as to what is Crohn's and what isn't. Peace of mind goes a long way!

Rashes, hives, itching, scabs, ulcers and such. Along with that I'll get sores in my nose that will NOT heal... arthritis in my hands, hips and a knee, an irritated left eye, and pretty frequent pain and sores in my mouth. My gums are almost constantly shedding skin which is weird! I also get a really weird pattern of bruising on my legs that scares me a little!

I'm off meds but am adhering to a pretty strict diet (SCD). Anyone in Crohns-world have a similar EIM pattern? If so, have you had any success relieving the symptoms? I've tried Humira, Metho, Flagyl, Prednisone..um...and some other things I can't remember!

 

[David]

Wow, that's a lot of EIMs. You poor thing

I'd give this a read/watch. I think it might be of use to you and provide a lot of insight.

 

[my little penguin]

You may want to see a Rheumo since they tend to help with EIM's better and can help you figure out what truly is crohn's and what is other stuff.
For DS when we saw an increase in EIM's his inflammation in his colon was also increasing.

 

[ArinMelissa]

David- very interesting, thank you!
And little penguin, thanks for your response. I've been seeing a rheumy regularly for 3 yrs... And we've tried just about everything. Humira, pred, methotrexate, increased Humira, increased methotrexate, elavil, flagyl, and the list goes on. Somehow my EIMs have managed to progress despite the meds.