Apriso and entocort side effects

[xoxava]

Short update. Just saw my dr and got results from the colonoscopy. He put me on apriso and mentioned we could try entocort. Anyone on these and had side effects? It showed the prednisone treated my crohns but I have a lot of scaring is this bad? So he gave me this to try and I see him dec 20 if its not working. Any info would be great thanks a bunch and I hope everyone is feeling well!!!

 

[Cat-a-Tonic]

I haven't been on apriso so I can't comment on that, but I'm currently on Entocort. The side effects haven't been too bad, the only side effect I've experienced is chronic headaches. After 2 weeks of headaches, I called my GI and he put me on Amitriptyline, which cured the headaches and helps me sleep at night (it also supposedly calms the bowels, but I didn't notice a difference there). I think other common side effects of Entocort are things like dizziness and nausea. It's not nearly as bad as other steroids like the dreaded pred. I have been on Entocort for about 2 months now and I haven't gotten moon face and I've only gained about 5 pounds (but I had lost about 20 over the past year so I have been trying to regain some weight anyway). Even before the Amitriptyline I didn't experience any insomnia on Entocort and it doesn't make me feel manic/hyper the way that pred did.

Keep in mind Entocort can take a little while to kick in. It took about 9 days for me to feel a noticeable difference, but I've heard others on here say it can take up to a month. So if it's not working by the time you go back to your doctor, keep an open mind about continuing with it just a little longer. Good luck!

 

[Nica]

Apriso is like asacol if memory serves. If so it has minimal side effects, entocort is a steriod that stays in your guts if you are sensitive to steroids it can cause some side effects, for most people it does not. Scar tissue is a way of life for crohnies. I have massive scar tissue in my guts from what the doc says.
If you can keep your inflammation down with those two meds you will be doing great!
I agree give it a bit of time to see how things go, sometimes it takes a bit for them to start working.

 

[Jessica]

Scar tissue is only bad when it gets to be so much it constricts your bowls and narrows passages. I have a lot too that we've already started talking about surgery.

I've been on Entocort for 2 yrs. LOTS of headaches. Cat's right. I don't take the meds she does for it. I'm hoping to be off of it soon. Sometimes I feel flu-ish. It usually doesn't last longer than half a day or so. If I don't get my rest is when I feel it come on.

Good luck <3

 

[Dras]

I've only ever been on entocort and sulfasalazine, I get headaches but rarely. Taking it while in remission made me gain some weight but not that badly. But since starting this new flare i've been on 9mg a day for over 2 months and i'm not feeling any better, but I think my body has built up some resistence to it. When I was first diagnosed though my Ento started working within a few days.

It's a nice drug, I think you will be very happy with it.