At the end of the day

[GNC Crohn's Man]

At the end of the day after all has settetled and passed..... What do you wish for the most? And are you actually trying to acheieve that goal?

For me I want to be physically stable enough to able to work 20+ hours a week... A fesiable goal... Hopefully I'll hit it......

Tonight I plan on going to sleep and waking up at 6 a.m. for my morning meds...
See simple.. Granted lots of valium makes you simple... You tka ea guess a which eng of the scike I'm f[fffffffokays
miginy dgspdgm

 

[kc0eks]

I would love nothing more than to feel like a living human. Right now I feel mostly dead. I may be physically alive, but I cant do a damn thing without some apsect of being sick ruining it. So I wish to feel at least somewhat well. As for trying to achieve, well I have tried as many things as I can, and none worked. So right now, im just kind of here.

 

[Skinsfan1229]

May I ask what you take the vallium for? I know that its a muscle relaxer but I've herad of people using it as a mood stablizer also.

It all depends on what state I'm in already I think. But If i'm ok, then I just wish that I can get through the day. I can have the energy to make it. I can attend school and that gives me a sense of achievement and accomplishment.

 

[Valentina]

at the end of the day I want Crohns to not take anything else away from "my life" and I dont want it getting in the way of the plans I have!! lol
just have to take it all one day at a time I suppose, be happy with today, worry about next month... next month

p.s. ativan helps me.. lol is that close to valium?

 

[Jeff D.]

I would like to be able to learn everything I can about this disease so I can try to teach people about it. I want to help as many people as possible. It would always be nice to never get another flare but thats only a drea.LOL

 

[Kossy]

I really don't wish much, just pray for the strength to be able to face all the challanges the day has in store for me.

 

[GNC Crohn's Man]

I don't take the Ativain as mood stablizer I take it as a tranquilzer.. Granted it sorta helps with mood... The thing is pred is a corticosteriod it DIRECTLY effects the levels of physical and emotional stress on the body... Therefore 55 now (30 mg and 25 mg 12 hours later) of prednisone is a lot... A normal person could possible deal with this for maybe 2+ weeks before starting to notice SERIOUS horminonal problems...

I have been on and off of it at high dosages for almost a year now... Taking the pred twice a day rather than once a day ahs helped me a lot though... My body can tolorate the drug much much easier.... The trouble is with cortisone it is one of those happy hormones that tell your body to stay awake and keep going... That's where the Atavain (valium based) comes into play... It acts on the central nervous system much like the effects of alchol.... This can prove to be a calming affect on people that are enterting or have entertred a manic mental state due to the severally unnatural levels of stress (cortisone) being pumped into my body...

I have never had to take anything to help with the jitters I get from prednsione before.... But now after beign on it so long my body is tired.... But it refuseses to rest... The only thing keeping me going is my diet and my 5000000000 suppplments I take a day.... The adtavain helps to calm me down.... I still can't sleep though... Going to talk to doc about that today... I want to know what they give to people that enter an uncontrolable manic state at the mental instututes... I want some of that... I need sleep.... All I get is a little slower brain actitivity here and there but no sleep...

I thought I read it right that they give up to 15 mg of atavain to people that enter a manic state at the hospital... I took 12 mg and 2 restorell... I feel mildly drowsy...

I want sleep... No I'm not just taking random pills... I keep a prescription/supllment chart that tracks waht I take, when I take, it and what dosage I take... I just like to be a human gueinea pig sometimes.....

Remember lack of sleep imperes your judgement greatly... You will notice large differences in my righting styles and my replies based off of what med is kicking in or kicking out atm...

 

[Cara Fusinato]

I want to go through my whole life being the 10% or so that DON'T have to have surgery for this.

 

[Skinsfan1229]

I agree with GNC crohns man, Sometimes you might notice changes in my writing because of meds.

I take ativan for sleep as needed, it helps when I have restless legs also.

 

[ravyn142003]

I'm new here but I'll reply anyway. I would like to go back to enjoying life as I knew it! Working, exercising all the time, looking and feeling good about myself. Wanting to go out into the world. Now I stay in the house mostly, only go to the store if I feel up to it. I'm grateful for being alive but I don't feel like I'm really living.

 

[tonya_n_ky]

I'd have to say getting as close to being like I was before Crohn's. Go back to work, feel like I have a disease and not feel like the disease has me. And also to be the best Mom and fiance' that I can be.

 

[DannyB]

I really don't have many wishes that I want to happen for me. I guess 2nd to good health I wish to find my soulmate somewhere out there in this big world but I know I can find that and acheive my goal someday.

 

[Jonny]

My goal is to get rid of the fistula i have and to have more energy every day.

 

[kieran]

hi i'm new here i've had crohn's for two years i'd love to go back before i had it working away going out drinking friday and saturday nights being able to eat what i like,not been tired all time, just to able to what any other 21year old can do!!

 

[ruthymg]

I'd just like to feel normal and get rid of this stoma. Oh and gain a little more self confidence so I'm not comparing myself to "well looking" girls.


Ruth

 

[Nancy Lee]

I want to be like the old me...like I was BC (Before Crohn's)

 

[andilynn09]

Short term, I wish to be able to finally get off the prednisone and be in remission so my husband and I can start a family, and hope that we can have a healthy family in spite of my disease/meds. Long term, I hope that I can manage my disease the best I can to try to stay "healthy" (relatively speaking)...once I get there, that is.

 

[ravyn142003]

I'm just tryin to get thru each day as it comes! Yeah I know, I already replied but I'm awake .

 

[soupdragon69]

I like to be able to get through each day without the exhaustion draining me to the core and also think more clearly. I had to put a research module on hold last year cause I flunked it twice and only had one more attempt left and want to pass not flunk again! Then I want to finish my degree and move on to masters which is something I never thought I would achieve being I have been told all my life I am thick.

Amazing what you can achieve when you try and when you climb out of the shell albeit timidly eh?

 

[Maggie-Muffin]

I don't wish much either, but I would wish for a pain free dayand get rid of this fissure, that refuses to go away
~~~HUGS~~
ika:

 

[TammySue62]

at the end of the day I want Crohns to not take anything else away from "my life" and I dont want it getting in the way of the plans I have!! lol
just have to take it all one day at a time I suppose, be happy with today, worry about next month... next month

p.s. ativan helps me.. lol is that close to valium?

HI I think ativan is the same as lorazapam is it not ? I take 3 pills (1mg) every night and still some nights cant sleep. Oh Well.






TAMMY:confused2:

 

[TammySue62]

At The End Of The Day

Hi Everyone
Just rolled out of bed.At the end of the day I wish these dam fistulas would go away and the freakin spasams I get at night in my legs and arms if thats what you want to call them. But I dont. Sleep throgh one night(I take 3 lorezapam and gravol) catch the odd night sleep. Before I was takin 5(5mg) diazapam my body got used to them. I think Ive tried all the pam family drugs.I wish to wake up just one day with no PAIN. And at the end of the day be able to hug a man who undestands the ups and downs of this wonderful CD.The last 3 couldnt. Especially my mood swings and not being able to drink and play pool at a bar. I could go on and on. But my life is pretty boring. The only thing Im grateful is I have my 16 yr old daughter (who is quite a handful these days)and my new poodle puppy dog my brother gave me. Oh yah cant leave my older sister out. Shes great helps me clean my house makes alot of differrent suppers and yummy deserts. Check out my post uder anything goes. Im still very upset about that thanks once again to this wonderful disease.



Tammy:depressed:

 

[Stuffette]

at the end of the day

I wish that I can stay rested, stay in remission, not take on too much and enjoy my family and friends. My new year's resolution was to not be a perfectionist and to worry about my health instead of my accomplishments. It is tough but winding up in the hospital again is not worth it.

 

[SoccerMom]

Good question. Aside from world peace, oh wait I`m not in the Mrs. America pageant....

I would like to have 1 day without feeling bone weary tired, like I am just plodding along one foot in front of the other until I can collapse in bed & then have the joy of waking up just as tired as I went to bed, my house is a mess, I just go to work (great health ins.) come home and sit on the couch too tired to do anything else.Sucks for my Husband more than me but he`s pretty good about it & my Girls are the BEST.I really hate putting all the extra responisbility on them.I can live with most of the stuff but that sucks!

Now that I think about it I would also like to drop the lots of extra padding the that prednisone left me with. That would be great! Well world peace would be good too.....

 

[xrayzerase]

cool question.
me?
get back to work (not work from home and never leave home except to go to dr-get meds/food)
to hang out with family and friends and feel at least 50% ok
but really:
if i get into remission-the first thing i want to do is climb a small mountain. winter or not--i'd be up there
second--more simple-and actually planned (but can't go til i am at least "stable"-
go with my dad to florida to visit my grandmother.
and 3rd
very simple:
play a good game of ball with my cat i try to get a little energy to play--but-she has been a good sport-almost like a nurse-follows me everywhere. (love my baby )
last:
fly to italy and run around through the tuscan hills lol--yeah-i guess i'd need $ for that huh?!

 

[meapache]

At the end of the day, i wish for Monica to have had her reversal surgery, have normal bowel movements with no complications, be able eat regular foods again..

 

[kissycole_1979]

I just want to be able to handle all the pressure this disease puts on my everyday life. I want to be able to be "normal" again.

 

[Jeff Inman]

Dude, Hang in there! I'm just north in TN....I've been off/on predinisone for about 10 years, but my max dose has only been about 40 mg...makes me feel like Superman until I taper it down to 20 mg. Silly me, I thought a steroid would "pump me up"...so I used to try to work out while I was on it...I later learned that it is not that type of steroid....it converts muscle into fat or something and makes you retain water...actually weakened me in the end!!! Anyway...it seems a lot of people on the site are using Prednisone extensively.
I avoid it at all costs and only take it about 8-weeks at a time during a major flair-up. Of course, I realize everybody's situation and needs are different but I have had huge success with Remicade & Imuran. Remicade is "rat-based" anti-body.
I am currently considering Humera "human-based" anti-body as an improved alternative. I highly recommend seeking alternatives to Prednisone. -Jeff