Back at square one... perianal abscesses

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Hey, ive posted before about abscesses... i have been suffering with perianal abscesses for a few month now, no antibiotics seem to work for long, i have ad an EUA on 4th june to see if they could find anything to explain why i keep getting them but they found nothing. Yesterday i woke up to what felt like another abscess coming up and today the pain is worse so ive had a feel and it seems that i have 2 abscesses or its gonna big one im not sure and it hurts so much when i wipe there too, im gonna b getting myself in to see my gp tomoz cos i cant wait till next week to see my consultant, its so frustrating because i never seem to get a break, i get over one thing then another things starts!! im hopin the doc doesnt give me the antibiotics i was on last time as i ended up in hospital with bad side effects.. sorry for goin on i just needed to have a little moan xx
 
I'm so sorry I'm going through the same ordeal myself. Are you going to probably get an MRI of the pelvis done?
 
If the MRI isn't picking it up, it's probably not an abscess. Maybe the skin is just raw, swollen or irritated. Could it be hemorrhoids?
 
it is abscesses, at the time of the mri i didnt have one they were lookin for a fistula or a deep infection cos that mite explain why i keep gettin them... on antibiotics now for these 2 abscesses... my consultant confirmed them as bein perianal abscesses over a month n half ago, i tend to get them around my anus and close to my lady bits aha not pleasent at all xx
 
So sorry you have to deal with those awful things, too. They're quite a pain in the ass! :)

I know every case is different, but more times than not... my abscesses and fistulas were not picked up by MRI's, even the special fistula protocol MRI's. Luckily I have a great colorectal surgeon, who knows me, and now recognizes that I am very in tune with my body. So when I tell him something is wrong, he schedules me for an EUA and/or abscess drainage and seton placements, usually within hours after I call him.

But after having over 20 abscesses operations and numerous Seton changes/placements, I still had a deep tissue abscess/fistula that was causing a lot of pain. He said it was inoperable.... waited a few months and couldn't take the pain anymore so I found a GI and Colorectal Surgeon at an IBD clinic in Houston who were willing to treat me and remove the fistula if possible. The aftermath of the surgery was quite horrifying. They had to remove a lot of tissue because I had a 'web-like network' of fistulas and abscesses taking over my right butt cheek, and a few scattered ones in different areas.

The wound and pain were terrible the first 2 months of recovery, and the wound still isn't healed completely, but I am feeling much better now, with no incidence of abscess or fistula since the surgery. Still in a terrible flare, but at least i can sit in a chair and drive again... (well, most days lol)

Hope you feel better, and if you need anyone to talk to, feel free to PM me. :)
 
thanks, it turns out i have 3 abscesses 2 on my right butt cheek and one in my groin area also on the right side but that one burst this mornin, not nice at all... ive had an EUA but they didnt find anythin, ive never had an abscess drained so i dont no what thats like... will they keep tryin to find out why i keep gettin them? i can go a couple of weeks where i dont have one but i always get one at least once a month which is very annoyin this month is the worst as i have 3 :/ the pain aint as bad now so hopefully the antibiotics may b workin but i wont last long haha as i said above im seein my consultant wednesday so i will b tellin her about them... i never thought crohns would affect me as much as it is :( i have noticed i keep gettin bad tummy cramps while ive had these abscesses i dont no if its linked to them or its just general tummy pain from crohns itself xx
 
hey, im on azathioprine 100mg but hopefully the doc will take it up to 200mg (thats wot they want me on), calcichew, paracetamol, buscopan, movicol.. thats all the meds i take... wednesday i see my consultant so the meds mite change somehow, i need stronger painkillers tho cos the paracetamol dont help at all as im gettin alot of joint pain too xx
 
thanks, it turns out i have 3 abscesses 2 on my right butt cheek and one in my groin area also on the right side but that one burst this mornin, not nice at all... ive had an EUA but they didnt find anythin, ive never had an abscess drained so i dont no what thats like... will they keep tryin to find out why i keep gettin them? i can go a couple of weeks where i dont have one but i always get one at least once a month which is very annoyin this month is the worst as i have 3 :/ the pain aint as bad now so hopefully the antibiotics may b workin but i wont last long haha as i said above im seein my consultant wednesday so i will b tellin her about them... i never thought crohns would affect me as much as it is :( i have noticed i keep gettin bad tummy cramps while ive had these abscesses i dont no if its linked to them or its just general tummy pain from crohns itself xx

Yeah, when I had my first in 2006, they did like 5 EUA's. Couldn't find anything, so they sent me home with pain meds and said there was nothing they could do. The last two years though, I DEMAND MRI's and special MRI fistula protocol. They usually don't find anything there either. I basically have to find surgeons who recognize that I am very in tune with my body, and if I say something is wrong, then there is definitely something wrong. The surgeons I went to in Houston had me hospitalized for over a week and did numerous scans and tests, all showed nothing. But once they got in there, they were blown away. It was supposed to be a 30 minute EUA/Exploratory surgery... Ended up taking almost 4 hours to remove the fistulas, drain abscesses, and install Seton drains.

But most abscess drainings are a walk in the park. They just cut it open some to let the puss drain and relieve the pressure, and you usually have immediate pain relief. For people with recurring abscesses they usually put in a Seton drain. This is to keep the abscess from healing on the outside first, which would cause the abscess to return, so it forces the fistula/abscess to heal from the inside-out and to keep it draining to prevent further abscess and infection. The Setons come in all shapes, sizes and materials. Your surgeon will use whatever he/she thinks is best according to size and placement of the abscess. If it's a big one, they will most likely start with something akin to a hard plastic zip-tie. (Mine was a huge horse-shoe perianal fistula, which my surgeon said it "made his career, biggest he had ever seen" lol) But if there are any problems or discomfort with your setons, they are usually happy to change them out with smaller, softer, more flexible ones... which can stay in indefinitely, depending on the patient.

I've had several for years now. Barely even notice them. I would much prefer having a few drains sticking out of my arse than having 2 or 3 new abscesses pop every week and require surgery every week.

Best of luck to you, and hope you feel better soon!

xx:highfive:
 
:mad2:I'm going thru same thing at mo,hate the bloody things had them on in off 20yrs,MRI scan on Friday surgery in next month,had an illeostomie 12yrs ago because of fistulas now have to go thru it all again,man I must have been bad in last life,
 
Just back from seein my consultant, she had not upped the dosage of my azathrioprine to 150mg and all bein well with my bloods next week it goes up to 200mg, theres also talk about puttin me on infliximab too, she is askin for fundin for it but said it wont b a problem gettin it... does this mean she will defo put me on it cos why get it in for me if she doesnt want me on it??? also will i still b on azathrioprine while on infliximab?? she thinks im still avin a flare and because of the abscesses she cant put me on steroids... this is a lot to take in, id b greatful for any advice xx
 
Well I think infliximab/remicade is the only biologic proven to help fistulas, and the fact that you have these at all is a sign that your disease is not under control. And it is quite common to stay on azathioprine while doing infusions. I think they usually call it combination therapy, and is considered the most successful at keeping severe cases at bay. I know all the side effects are scary to think about at first, but I've done every treatment there is, and remicade was by far the least scary and had the least amount of side effects (for me at least), its the only one I would even consider trying again... Because humira and Cimzia were awful... Again, just my personal experience.
 
Thanks Avw, ive been readin about it and tbh it sounds scary aha, i suppose in the long run it for the best cos i cant keep goin on the way i am as im gettin abscesses more or less every 2 weeks and nothin clears them totally, im back seein my consultant 24th july.. ive had blood tests done today for the infliximab and im waitin to have the tb one done as it couldnt b done at the same time cos they dont do it where i go for bloods so i have to go on a day ward or somethin xx
 
Unfortunately, I know the feeling all too well, and it is no way to live. Before I had my fistulas cut out, I was calling my colorectal surgeon at least once a week to drain new abscesses. Actually got to the point where I didn't even have to sign in or wait at the outpatient surgery center. He would just take me straight to the back, get anesthesiologist to knock me out and drain as many as he could find, clean and check the old ones, and make any necessary changes with the drains. Hope the treatments work for you! =]
 

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