Back to square one?

[Niks]

UUUUURRRRRRGGGGGHHHHHH!

After celiacs diagnosis, and told to wean down from pred and stop salofalk and pred foam, J has now not had a BM since Saturday. Everything on her hurts to touch. Her abdo pain has returned and seems worse this time on the right side, which is now going round to her back! She is VERY shaky.

This seems very much like deja vu. Her IBD nurse has told her to stop reducing her Pred and go back on Salofalk. This was Tuesday, she still seems to be getting progressively worse. Her bleeding seems to have settled but that is the only thing that has got any better.

She has kept strictly to the GF diet and only eaten things we have prepared from scratch.

So frustrating and I just don't know what to do this time. She is very anti calling nurse or going to hospital. It is her birthday tomorrow. She is determined not to be in hospital for her birthday or christmas. One good thing so far is that she hasn't been vomiting this time!

Any ideas? :frown:

 

[Farmwife]

So sorry to hear this. My Grace has these problems.
One thing we found when we did GF diet that it was high in starches like potatoes and was told that can be very binding.
Is she doing warm baths and hot packs? It helps Grace.
Yoga poses helps also. Go on-line and See which ones.
Is she taken any stool softeners?

I hope she gets better soon!

 

[Niks]

Yes she's on several laxatives! Thank you, will check out the yoga!

Also she is eating a fair amount of potatoes, we are struggling with finding things she can eat, maybe we need to look more closely at this.

 

[my little penguin]

Yeah that !
We did gluten free for a long time with DS.
Look for enjoy life foods
http://www.enjoylifefoods.com/mobile/

Add plenty of pears - fruit cups work best soft peel fruit.
Easy recipes think of what you can have not what you can't
Chicken n dumpling
Mix King Arthur Gf flour with palm shortening and milk for dumpling
Kitchen basics chicken stock
Chicken carrots peas butter with potatoes

Tacos - home seasoning

Mexican chicken - chicken rice beans corn
Eggs with Ham spinach veggies casserole .

Kinnicknick foods

http://consumer.kinnikinnick.com/index.cfm/fuseaction/consumer.home.html

We still eat there doughnut ( nut free)
And k toos cookies.

Mexican casserole
Chicken tortilla chips avacados tomatoes cheese sour cream
Layer bake

Chex cereral

Ian's food also is Gf

http://www.iansnaturalfoods.com/

Vans has good Gf waffles to be used as bread in a pinch

As far as the pain I would call the Gi since she is getting worse

 

[jmckinley]

www.wellfedhomestead.com has some great muffins made with coconut flour.

 

[Sascot]

Sorry to hear she is suffering again. I don't blame her for not wanting to phone the docs. My kids are getting like that too. Amy was having a bit of pain in her tummy yesterday and all I could think of was "please don't get complications so close to Christmas"
Hope she feels better and :birthday2:

 

[upsetmom]

Happy birthday....:bdayparty:

 

[Niks]

We got through J's birthday, had a lovely day :thumleft:. She seems to be doing a little better.

Still no BM and some abdo pain, but eating fairly well and no sickness..

Have a great day everyone xx

 

[kimmidwife]

Happy Birthday! How is she doing today?

 

[Niks]

Hi!

She seems to be okay! Her GI is going to leave her on 30mg Pred and Salofalk enemas until after Christmas now, hopefully this will keep her going!