- Joined
- Jan 3, 2013
- Messages
- 11
Guys, I'm going to have to give up on LDN and Uceris. At least for now. There were a few months there that I thought I'd found the golden ticket and I felt amazing, but it's been almost a year of it and although I've been ok for a period, I'm just not getting any better right now and I don't know what else to do.
I just feel so, so sick. That gnawing, dull, completely over-taking pain behind my belly button is back. I remember this pain from when I was first diagnosed at 10. My mouth fills up with saliva and I have to spit it out or I'll throw up, which I often do anyway. On Saturday I started throwing up and didn't stop until yesterday afternoon. Knock on wood hopefully that bizarre uncontrollable nausea is over. I've had a mild fever (99ish) for a few weeks. I'm so tired. So, so tired. I had an iron infusion Friday, the first of three, for pretty bad anemia. I don't know if this is all just a reaction to that (throwing up the day after, extreme tiredness, etc.) or what. But I still have two more to go.
The past two days I feel like a giant fog is pushed over my head. Bright lights are too much. I'm so dizzy I could lie down for days. Somehow I haven't missed any work yet, but I'm literally crawling into bed as soon as I get home, missing time with my 3 year old beautiful daughter. My poor husband has been doing everythingggg around the house the past few weeks.
I'm just a little miserable and don't know where to turn at this point. Stomach pain I'm used to and can deal with, but this crazy dizzy, foggy feeling is making me feel like I'm not even myself. I can't connect to anything.
My doctor wants me back on Humira, which never really seemed to help all that much anyway. But at least I wasn't lying in bed all evening and night and feeling like a different person when I was on it. Remicade is a no go (reaction), he seems hell bent on Humira and isn't really offering up any other options. I went off of Humira last year after about 6-7 years on it because I wound up with Shingles and read about LDN.
Sorry for the vent. I'm seriously struggling at work right now, so dizzy I can barely see.
I just feel so, so sick. That gnawing, dull, completely over-taking pain behind my belly button is back. I remember this pain from when I was first diagnosed at 10. My mouth fills up with saliva and I have to spit it out or I'll throw up, which I often do anyway. On Saturday I started throwing up and didn't stop until yesterday afternoon. Knock on wood hopefully that bizarre uncontrollable nausea is over. I've had a mild fever (99ish) for a few weeks. I'm so tired. So, so tired. I had an iron infusion Friday, the first of three, for pretty bad anemia. I don't know if this is all just a reaction to that (throwing up the day after, extreme tiredness, etc.) or what. But I still have two more to go.
The past two days I feel like a giant fog is pushed over my head. Bright lights are too much. I'm so dizzy I could lie down for days. Somehow I haven't missed any work yet, but I'm literally crawling into bed as soon as I get home, missing time with my 3 year old beautiful daughter. My poor husband has been doing everythingggg around the house the past few weeks.
I'm just a little miserable and don't know where to turn at this point. Stomach pain I'm used to and can deal with, but this crazy dizzy, foggy feeling is making me feel like I'm not even myself. I can't connect to anything.
My doctor wants me back on Humira, which never really seemed to help all that much anyway. But at least I wasn't lying in bed all evening and night and feeling like a different person when I was on it. Remicade is a no go (reaction), he seems hell bent on Humira and isn't really offering up any other options. I went off of Humira last year after about 6-7 years on it because I wound up with Shingles and read about LDN.
Sorry for the vent. I'm seriously struggling at work right now, so dizzy I can barely see.
