Bad news

[vness1208]

bad news

my daughter was diagnosed w/ chrones in Dec 2010 and has been doing good up until now. doctors called and said her bloodwork was abnormal and think she might have some type of liver disease she is going to have some type of mri & possibly a liver biopsy.. shes at her grandmothers until wednesday and I havent told her the bad news.. Im nervous she will be scared/get stressed and have a flare up ugh..

 

[Dexky]

Hi Vness, that sounds exactly like my son's intro to crohns. He was also dxed with PSC, a degenerative liver disease. I hope you get better news than that! Good luck!

 

[AZMOM]

Thinking of you all. Just take it one day at a time. It's hard when you feel like things are snowballing, I know.

Hang in there and keep us posted....

J.

 

[vness1208]

thanks so much. hey dexky did your have any symptoms of the liver disease or did they test based on blood work?

 

[Dexky]

No symptoms except for enlarged liver and spleen on palpation and elevated liver enzymes. He's never had any pain with it.

 

[vness1208]

my daughter has no symptoms either but yea sounds like it could be the same thing, but im glad to hear that your son has no pain with it..

 

[muppet]

I don't want to offer false hope but it COULD be a medication effect? 6-mercaptopurine can mess with the liver and pancreas. I think Imuran, too.

Have you had any resolution on this since your last post? This is the sort of thing I'd be compelled to get a second (and third, maybe fourth) opinion on w.r.t. what the actual pathology could be (chronic, drug induced...)

 

[Dexky]

Hi Muppet! Vanessa started another thread about the liver testing here...http://www.crohnsforum.com/showthread.php?p=327560#post327560

So far the results have been good but she still is due to have a liver biopsy...I think.