Bad reaction to Remicade

[islandmama]

Good Evening, new here, after searching for answers online I came across the is forum.

I've been on Remicade since Feb 2013. At first was great! I think for the past year I have been feeling great for the most part. But sometimes after Remicade I feel really bad. This past time (last Tuesday, the 13th) The last 30 min of infusion, I started having pain all over in my veins that went on for several hours. and since I still haven't felt well, pain all over, my head hurts terribly, very sick to my stomach, elevated heart rate and extremely tired and weak. Last night I was seriously scared of how bad I was feeling. I usually have some version of these symptoms after each infusion, but never the vein pain. Wondering if anyone else has experienced anything similar. Thanks in advance for any advice.

 

[DJW]

Hi and welcome.

I have no advice. I'm a remicade newbie.
Someone will be along who can help. Sending you my support.

 

[islandmama]

Thank You

 

[FrozenGirl]

Hmm... doesn't sound like an allergic reaction but some sort of reaction. Did you mention it to your nurse when they were doing the infusion?

 

[islandmama]

No, I should have...kinda third world medical care around here...nurse is good, but there was no dr. on site....Haven't been able to get ahold of a Dr. since then...hoping for Tuesday! Thank you....mostly feel better, have been resting past couple of days but still pain/burning in vein in my neck...anyway, thank you for the support ;-)

 

[FrozenGirl]

If it happens again tell your nurse. My infusion site only has an on call doc but nurses are well trained on reactions and what to do. I know in Canada they have the Bioadvance network which has 24/7 on call nurses who will tell you what if anything you need to do. Do you have anything like that?