Kev
Senior Member
Hi all.. I've been going downhill slowly but surely since the end of November past. I have no explanation for this downward trend. I'm on 4 grams of Salofalk, still on the same regimen of diet, meds, exercise, supplements and added calcium/enzyme
treatment. In short, nothing has changed except suddenly it all seems to have stopped working. In the past I've experienced sudden onset downturns or flares that lasted 1 - 3 days, were extremely bad, then just as quickly went away. Those would typically knock me back 2 or 3 weeks in my slow but gradual recovery. This latest is different. Not severe, just slow. Despite going to the hospital, having a two week round of nightly Cortifoam 10% 15 g (Hydrocortisone Acetate USP Rectal Aerosol)
added to my meds, I continue to go downhill just a little more each passing day. Now I've got inflammation (area is hot to the touch and swollen/very painfull) in my neck. Left side, starting just behind the ear and moving down to collarbone. I think I've got infection or inflammation in one or more of the glands in this area. Now, my question is has anyone else ever had anything remotely like this occur to them??? The reason I ask is that I'm due back at the hospital on Tues morning. I will fill them in on the total lack of success of the cortifoam (to think I just blew $100 up my ass and all it did was increase my pain without aiding my symptoms). I am pretty sure the next step will be Prednisone. But, when I tell them of my neck pains, it sure would help in advance IF I knew that others had these pains too.. Otherwise, it might be that I do have a totally unrelated infection of one or other of my neck glands, and that the 4 grams of Salofalk are masking the other symptoms... Did anyone ever experience that? Your anti-inflammatories masking the typical symptoms of a routine illness/infection? Like. a cold or flu is not as bad as normal cause your IBD/crohns meds were mollifying the pre IBD/Crohns effects
OR, has anyone any words of caution of starting on pred IF another infection of some sort or the other is already underway? Any thoughts would be welcome...
treatment. In short, nothing has changed except suddenly it all seems to have stopped working. In the past I've experienced sudden onset downturns or flares that lasted 1 - 3 days, were extremely bad, then just as quickly went away. Those would typically knock me back 2 or 3 weeks in my slow but gradual recovery. This latest is different. Not severe, just slow. Despite going to the hospital, having a two week round of nightly Cortifoam 10% 15 g (Hydrocortisone Acetate USP Rectal Aerosol)
added to my meds, I continue to go downhill just a little more each passing day. Now I've got inflammation (area is hot to the touch and swollen/very painfull) in my neck. Left side, starting just behind the ear and moving down to collarbone. I think I've got infection or inflammation in one or more of the glands in this area. Now, my question is has anyone else ever had anything remotely like this occur to them??? The reason I ask is that I'm due back at the hospital on Tues morning. I will fill them in on the total lack of success of the cortifoam (to think I just blew $100 up my ass and all it did was increase my pain without aiding my symptoms). I am pretty sure the next step will be Prednisone. But, when I tell them of my neck pains, it sure would help in advance IF I knew that others had these pains too.. Otherwise, it might be that I do have a totally unrelated infection of one or other of my neck glands, and that the 4 grams of Salofalk are masking the other symptoms... Did anyone ever experience that? Your anti-inflammatories masking the typical symptoms of a routine illness/infection? Like. a cold or flu is not as bad as normal cause your IBD/crohns meds were mollifying the pre IBD/Crohns effects
OR, has anyone any words of caution of starting on pred IF another infection of some sort or the other is already underway? Any thoughts would be welcome...