Regular Joe
Senior Member
- Joined
- Sep 2, 2009
- Messages
- 302
I want to welcome the number of people new to the forum.
I'm going to "blame" the disease because it's there and it really does have this propensity to contribute to the backlogs in life. I've been living with a flare that became active again after a couple months of relief. This is part of Crohn's Disease - it's not fun - but not everything in life is designed to be fun.
So we come to this forum and try to figure out how to live around the limitations of flare-ups. Sometimes when we feel healthy or energetic, we take vacations and join life at higher energy levels, and we learn to live again seemingly without those limitations.
You know it's OK to live life feeling good with Crohn's Disease, while it's "sleeping" or less active. It's OK to grasp the activities that face us with more energy that comes from feeling better. Sometimes it's only a "pharmacological intervention" that lasts only as long as we're prescribed the drug which is most useful. It doesn't matter does it? If the symptoms are "masked" by prednisone, the outcome is still the same. We feel better and more energetic.
It's not much different overall if we have remission and flares without masked symptoms. My job has been to accept my limitations, but also to learn how to live within them even when they slow me down and cause me pain. I need to adjust my attitude to make the best of "feeling better" without forgetting that remission is not a cure. I guess you couild say that I won't ever really be closing the door on my diagnosis.
So if you're new, I may or may not give you a personal response to your post. Please don't take that personally. My reality is that I have a slight "life backlog". I'm here if you need me, but I might need a nudge.
Welcome all and thanks for joining us.
Joseph
I'm going to "blame" the disease because it's there and it really does have this propensity to contribute to the backlogs in life. I've been living with a flare that became active again after a couple months of relief. This is part of Crohn's Disease - it's not fun - but not everything in life is designed to be fun.
So we come to this forum and try to figure out how to live around the limitations of flare-ups. Sometimes when we feel healthy or energetic, we take vacations and join life at higher energy levels, and we learn to live again seemingly without those limitations.
You know it's OK to live life feeling good with Crohn's Disease, while it's "sleeping" or less active. It's OK to grasp the activities that face us with more energy that comes from feeling better. Sometimes it's only a "pharmacological intervention" that lasts only as long as we're prescribed the drug which is most useful. It doesn't matter does it? If the symptoms are "masked" by prednisone, the outcome is still the same. We feel better and more energetic.
It's not much different overall if we have remission and flares without masked symptoms. My job has been to accept my limitations, but also to learn how to live within them even when they slow me down and cause me pain. I need to adjust my attitude to make the best of "feeling better" without forgetting that remission is not a cure. I guess you couild say that I won't ever really be closing the door on my diagnosis.
So if you're new, I may or may not give you a personal response to your post. Please don't take that personally. My reality is that I have a slight "life backlog". I'm here if you need me, but I might need a nudge.
Welcome all and thanks for joining us.
Joseph
