C DIFF?... or something, I dunno, I'm driving myself crazy.

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Dec 4, 2012
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*****LONG POST ALERT!*****

Diagnosed 3.5 years ago, haven't had a flare since then... til this current one. In late Jan. I went on Augmentin for a sore throat, and I believe it started this whole flare-y process. Right as I could feel the flare coming on, my wife, son and I all got torn apart with Norovirus for a few days. By the time the virus was gone I was right smack in the middle of the stomach-cramping, bloating, wet-fart, quasi-constipated flare symptoms I so fondly remembered from 2012.

GI put me Uceris for what he called "mild inflammation" but just days later--as the steroid started to really pay dividends--a stool test revealed C-Diff, so I was put on Metronydazol and taken off Uceris immediately. Wasn't better after the Metro, so GI then gave me a scrip of Vancomycin which I took for 2 days before the colonoscopy I had scheduled back in December (when I was in remission.)

Colonoscopy revealed no more infection, and mild inflammation a bit further up in my colon than I had when orginally diagnosed. The colonoscopy was 3/1, and I was feeling 90% better, with no more stomach cramps, normal pooping, and no blood. Then today, out of the blue, the ****--pun intended--hit the fan. I'm on the toilet for what has to be the 15th time today, constant stomach pains, and crazy bloating. GI says C DIFF CAN COME BACK?!?!?! and I should come in and take another fecal test on Monday.

Given that everything has been descibed as "mild" with regards to my Crohn's at every step, and given how extreme and sudden this flare has been today, is it reasonable to assume that C Diff is back? GI says we won't know until the test, but in the meantime, it's okay to go back on the Uceris, which was working really well before. Ths strikes me as odd considering the whole reason I went off the steroid in the first place was its propensity to make an infection worse. The symptoms aren't really livable--I've been on my back all day and unable to parent my 2yo--so the steroid will be a welcome addition if it helps out in that department, but it seems crazy that my GI would tell me it could be C Diff and then encourage me to take a steroid.

(If you read the whole thing I'll buy you a drink.)
 
I am sorry for what you are suffering. I wonder if you need a second opinion. Please keep us updated. I hope you feel better real soon.
 
Ugh, yes, c-diff can come back. The doctor may want to get you on something to get a jump start in case it is a flare instead of an infection.

How they get you straightened out soon, waiting is a total pain!!

Btw- I'll take a rain check on that drink, my trip to NYC next week was just cancelled lol.
 
Today hasn't been as bad but I'd like Monday to hurry up and get here. My GI mentioned Vedol... something (an infusion) yesterday if this is just a flare and not C-Diff. Does anyone have experience with this? I know it's fairly new, but I'm for trying anything that's not an immunosuppressant.




ps. Have been just on Lialda and mesalamine enemas for the last 3 years and they worked fine, but it seems my disease has progressed.
 
I am sorry for all the trouble you are having. I have never even heard of Vedol. I hope it does the trick for you. Please let us know how you are.
 
BB3000-

My first two Drs explained it this way to me.
You can grade your CD on two scales both 1-10
Disease process and symptoms. So your symptoms can be a
9 and the disease process can be a 5. Which I guess is better than
low symptoms but badly diseased colon.

I am sorry your having trouble- I hope its not Cdiff, I have never had it but, I underttand it can be hard to get rid of!

Lauren
 
Postscript: it was CDiff, I went on Vanco, and I've been symtom-free for a week. No new drugs, no infusions needed, GI says back to just Lialda and mesalamine enemas when I finish the Vanco in a month or so. Pleased as punch. Thanks for support, y'all.
 
Never had it myself by my wife was tested for it recently. We thought she had it, but it showed up negative in her tests. It would have explained her recent GI symptoms though.
 

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