Calprotectin test

[Lilly1982]

Hey all!

I am currently undiagnosed with Crohn's at age 32, but have been diagnosed with IBS since I was 20.
I have had continual probleams with severe upset stomach, sleepless nights, fevers, mouth ulcers, anal skin tags and since 2009 (but only diagnosed this year) a complex perianal fistula.

All my bloods have come back fine, colonoscopy of large bowel fine, I am due to have an MRI of my small bowel in the next 4 weeks all being well.

I went to my GP today and got the results of my calprotectin test. Unfort my GP didn't seem to have a great understanding. My result was 100 which I was advised was moderate, and above the normal levels which should be 50.

Has anyone been diagnosed off of this?

The results will be sent to my colorectal surgeon and also to gastroenterology but unfort they don't seem to all speak here so you end up having to deal with them all separately.

Any advise would be greatly received. xx

 

[LizzieB]

Hi Lilly,

Well, calpro levels isn't enough to diagnose in itself. They're a good indicator as to what's happening inside. During my last hospital visit my levels were 1200 but all other tests came back normal. I had high inflammation in my blood but then 3 days later they came back normal. Pretty odd.
Normal calpro levels are between 10-60. Yours is a bit off, but if it is something hopefully the MRI will pick it up soon! I think that's your best bet. Although Crohn's is great at hiding and none of my scopes and scans picked up anything for a while.
Good luck